OMEGA: Outcome Measures in Eosinophilic Gastrointestinal Disorders Across the Ages

NCT ID: NCT02523118

Last Updated: 2025-09-12

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

1350 participants

Study Classification

OBSERVATIONAL

Study Start Date

2015-07-17

Study Completion Date

2051-01-01

Brief Summary

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The purpose of this observational study is to find the best measures to define how well a person with eosinophilic disorder is doing. People with EoE, EoG, EoN and EoC normally undergo endoscopy and/or colonoscopy where cells are collected for microscopic analysis. Treatments are then decided based on how the cells look. We are aiming to compare different tissue components such as inflammatory cell types with clinical symptoms. We want to see if scores on standard questionnaires can give us an idea how well the person is doing.

Detailed Description

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This is a longitudinal observational study in which individuals (males and females 3 years of age and greater) with EoE, EoG, EoN and EoC will be followed over the course of time to see if standard questionnaires can give us an idea of how well the person is doing.

Participants undergoing standard of care (normal, routine care) endoscopies and/or colonoscopies will have biopsies (small pieces of tissue from the GI tract normally collected during these procedures) collected and used for the research study. Participants will also complete questionnaires related to their symptoms and quality of life. Participants will be followed over the course of time and asked to complete the questionnaires at various time points throughout the study.

Conditions

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Eosinophilic Gastrointestinal Disorders (EGIDs) Eosinophilic Esophagitis Eosinophilic Gastritis Eosinophilic Gastroenteritis Eosinophilic Colitis

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

OTHER

Eligibility Criteria

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Inclusion Criteria

* Males or females 3 years of age and older
* Mucosal eosinophilia:

EoE ≥ 15 eosinophils/HPF in the distal or proximal esophagus EoG ≥ 30 eosinophils/HPF in 5 HPF\'s in the body and/or antrum EoN ≥ 53 eosinophils/HPF in the duodenum and/or ≥ 56 eosinophils/HPF in the jejunum and/or ileum EoC ≥ 84 eosinophils/HPF from the transverse or descending colon and/or ≥ 32 eosinophils/HPF from the rectosigmoid colon or a biopsy from any colonic location with ≥ 100 eosinophils/HPF

\- Presence of symptoms is required for patients who are newly diagnosed but not required for patients who were previously diagnosed.

Exclusion Criteria

* History of intestinal surgery other than G tube placement
* Enrolled in a blinded investigational study at the time of the first study visit
* Have esophageal stricture (\<3mm)
* Have other identifiable causes for eosinophilia (except Inflammatory Bowel Disease): infections, Gastrointestinal (GI) cancer, other GI inflammatory disease (e.g., Ulcerative Colitis or Crohn\'s Disease)
Minimum Eligible Age

3 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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National Institute of Allergy and Infectious Diseases (NIAID)

NIH

Sponsor Role collaborator

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

NIH

Sponsor Role collaborator

ORDR

UNKNOWN

Sponsor Role collaborator

National Center for Advancing Translational Sciences (NCATS)

NIH

Sponsor Role collaborator

Children's Hospital Medical Center, Cincinnati

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Marc E Rothenberg, MD, PhD

Role: PRINCIPAL_INVESTIGATOR

Cincinnati Children's Hospital Medical Center

Locations

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Mayo Clinic Hospital

Phoenix, Arizona, United States

Site Status RECRUITING

Arkansas Children's Research Institute

Rogers, Arkansas, United States

Site Status RECRUITING

Rady Children's Hospital

San Diego, California, United States

Site Status RECRUITING

University of Colorado Denver

Aurora, Colorado, United States

Site Status RECRUITING

Children's Hospital Colorado

Denver, Colorado, United States

Site Status RECRUITING

Northwestern University

Chicago, Illinois, United States

Site Status RECRUITING

Ann and Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, United States

Site Status RECRUITING

Riley Children's Hospital

Indianapolis, Indiana, United States

Site Status COMPLETED

National Institutes of Health (NIH)

Bethesda, Maryland, United States

Site Status RECRUITING

Tufts University

Boston, Massachusetts, United States

Site Status COMPLETED

Mayo Clinic

Rochester, Minnesota, United States

Site Status COMPLETED

Icahn School of Medicine at Mount Sinai

New York, New York, United States

Site Status RECRUITING

University of North Carolina, Chapel Hill

Chapel Hill, North Carolina, United States

Site Status RECRUITING

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States

Site Status RECRUITING

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

Site Status RECRUITING

University of Pennsylvania

Philadelphia, Pennsylvania, United States

Site Status RECRUITING

Vanderbilt University Medical Center

Nashville, Tennessee, United States

Site Status RECRUITING

Baylor College of Medicine & Texas Children's Hospital

Houston, Texas, United States

Site Status RECRUITING

University of Utah

Salt Lake City, Utah, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Bliss Magella

Role: CONTACT

513-636-7832

Facility Contacts

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Renee Nunez

Role: primary

480-301-4992

Allison Bruton

Role: primary

501-364-1060

Kira Chaiboonma

Role: primary

(858)-966-1700 ext. 226884

Keanna Capener

Role: primary

303-724-8974

Rachel Andrews

Role: primary

(720) 777-1994

Tenesha Thomas

Role: primary

Mary Riordan

Role: primary

312-227-4558

Perla Adames-Castillo

Role: primary

Jaimie Gowatsky

Role: primary

212-241-4908

Lucas Plott

Role: primary

919-966-8559

Bliss Magella

Role: primary

513-636-7832

Ignacio De La Torre

Role: primary

215-590-6187

Erin Lee

Role: primary

215-662-2493

Maureen DeMarshall

Role: backup

215-349-8546

Regina Tyree

Role: primary

(615) 343-6845

Amanda Vega

Role: primary

832-824-0939

Daisy Vita (Tran)

Role: backup

(832)-824-3640

Sophia Schuman

Role: primary

801-585-0894

References

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Safroneeva E, Pan Z, King E, Martin LJ, Collins MH, Yang GY, Capocelli KE, Arva NC, Abonia JP, Atkins D, Bonis PA, Dellon ES, Falk GW, Gonsalves N, Gupta SK, Hirano I, Leung J, Menard-Katcher PA, Mukkada VA, Schoepfer AM, Spergel JM, Wershil BK, Rothenberg ME, Aceves SS, Furuta GT; Consortium of Eosinophilic Gastrointestinal Disease Researchers. Long-Lasting Dissociation of Esophageal Eosinophilia and Symptoms After Dilation in Adults With Eosinophilic Esophagitis. Clin Gastroenterol Hepatol. 2022 Apr;20(4):766-775.e4. doi: 10.1016/j.cgh.2021.05.049. Epub 2021 May 29.

Reference Type DERIVED
PMID: 34062314 (View on PubMed)

Related Links

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https://www.rarediseasesnetwork.org/cms/CEGIR

Learn more about CEGIR at this website.

Other Identifiers

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U54AI117870

Identifier Type: OTHER_GRANT

Identifier Source: secondary_id

2015-2311

Identifier Type: -

Identifier Source: org_study_id

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