Study of Prophylaxis, ACtivity and Effectiveness (SPACE) in Hemophilia Patients Currently Treated With ADVATE or RIXUBIS

NCT ID: NCT02190149

Last Updated: 2021-03-17

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

64 participants

Study Classification

OBSERVATIONAL

Study Start Date

2014-07-22

Study Completion Date

2016-03-29

Brief Summary

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This 6-month prospective outcomes study addresses the association between timing of infusion, patient activity levels, and bleeding episodes through patient-reported measurements.

Detailed Description

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Conditions

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Hemophilia A Hemophilia B

Study Design

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Observational Model Type

OTHER

Study Time Perspective

PROSPECTIVE

Study Groups

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ADVATE (Factor VIII)

Participants will remain on their current (pre-study) treatment regimen of ADVATE throughout the study period

ADVATE (Antihemophilic Factor [Recombinant])

Intervention Type BIOLOGICAL

RIXUBIS (Factor IX)

Participants will remain on their current (pre-study) treatment regimen of RIXUBIS throughout the study period

RIXUBIS (Coagulation Factor IX [Recombinant])

Intervention Type BIOLOGICAL

Interventions

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ADVATE (Antihemophilic Factor [Recombinant])

Intervention Type BIOLOGICAL

RIXUBIS (Coagulation Factor IX [Recombinant])

Intervention Type BIOLOGICAL

Other Intervention Names

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Octocog alfa

Eligibility Criteria

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Inclusion Criteria

* 13 to 65 years old at the time of screening
* has moderately severe or severe hemophilia A or B (FVIII/FIX level

≤2%), with or without transient inhibitors
* Hemophilia A patient currently prescribed ADVATE (FVIII) or Hemophilia B patient currently prescribed RIXUBIS (FIX)
* previously treated with plasma-derived FVIII/FIX concentrates or recombinant FVIII/FIX for ≥150 documented exposure days (EDs)
* is willing and able to comply with the requirements of the protocol
* is proficient in the English language to allow for use of the SPACE eDiary

Exclusion Criteria

* inhibitor titer ≥0.6 Bethesda units or currently being treated for an inhibitor
* has participated in another clinical study involving a medicinal product or device within 30 days prior to enrollment or is scheduled to participate in another clinical study involving a medicinal product or device during the course of this study
* is a family member or employee of the investigator
* elective major surgery is planned within 6 months after enrollment which may interfere with activities of daily living (at investigator's discretion)
* continuously require walking assistance devices (eg, wheelchair, crutches, etc.)
Minimum Eligible Age

13 Years

Maximum Eligible Age

65 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Baxalta now part of Shire

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Study Director

Role: STUDY_DIRECTOR

Takeda

Locations

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Orthopaedic Hospital DBA Orthopaedic Hemophilia Treatment Center

Los Angeles, California, United States

Site Status

Rady Childrens Hospital

San Diego, California, United States

Site Status

University of Colorado

Aurora, Colorado, United States

Site Status

Bleeding and Clotting Disorders Institute

Peoria, Illinois, United States

Site Status

University of Kentucky Medical Center

Lexington, Kentucky, United States

Site Status

Johns Hopkins University School Of Medicine

Baltimore, Maryland, United States

Site Status

Childrens Hospital of Michigan

Detroit, Michigan, United States

Site Status

Michigan State University

East Lansing, Michigan, United States

Site Status

Munson Medical Center

Traverse City, Michigan, United States

Site Status

Children's Mercy Hospitals & Clinics

Kansas City, Missouri, United States

Site Status

North Shore/Long Island Jewish PRIME

Great Neck, New York, United States

Site Status

The Presbyterian Hospital

Charlotte, North Carolina, United States

Site Status

Oregon Health & Science University

Portland, Oregon, United States

Site Status

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

Site Status

The Vanderbilt Clinic

Nashville, Tennessee, United States

Site Status

The University of Texas MD Anderson

Harlingen, Texas, United States

Site Status

Puget Sound Blood Center

Seattle, Washington, United States

Site Status

Countries

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United States

Related Links

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https://clinicaltrials.takeda.com/study-detail/5f6b5fc24db2bf003ab457fd

To obtain more information on the study, click here/on this link.

Other Identifiers

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061302

Identifier Type: -

Identifier Source: org_study_id

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