Determine the Incidence of Long QT Amongst a Large Cohort of Subjects Diagnosed With Unilateral or Bilateral Sensorineural Hearing Loss.

NCT ID: NCT02082431

Last Updated: 2020-10-05

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

600 participants

Study Classification

OBSERVATIONAL

Study Start Date

2014-08-31

Study Completion Date

2020-07-20

Brief Summary

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The purpose of this study is to determine the true incidence of long QT (LQT) amongst a large cohort of subjects diagnosed with unilateral (right/left) or bilateral sensorineural hearing loss.

Detailed Description

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The purpose of this study is to determine the true incidence of long QT (LQT) amongst a large cohort of subjects diagnosed with unilateral (right/left) or bilateral sensorineural hearing loss.

The goal of this study is to answer the following questions:

1. What is the incidence of an abnormal ECG (QTc \> 450 msec) in neonates greater than a week of age with either unilateral or bilateral Sensorineural hearing loss?
2. What percentage of neonates greater than one week of age with either bilateral or unilateral sensorineural hearing loss and an abnormal ECG have an identifiable genetic mutation?
3. What is the incidence of an abnormal genetic mutation consistent with long QT regardless of the ECG in neonates with bilateral sensorineural hearing loss?

Conditions

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Sensorineural Hearing Loss Long QT Syndrome

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

* All newborns who demonstrate a refer in one or both ears on a routine newborn hearing screen
* Documentation of informed consent
* Inborn
* Ability to perform an ABR (auditory brainstem response screen technology) screening test
* No major anomalies
* Subjects' parents willing to provide follow-up data on their child

Exclusion Criteria

* Newborns with a syndromic cause of hearing loss
* Parents unwilling to provide follow-up data
* Major congenital anomalies
* Major medical problem or conditions. (i.e., hypoxic ischemic encephalopathy (HIE), persistent pulmonary hypertension neonate (PPHN), meconium aspiration, etc.)
* Congenital cytomegalovirus (CMV)
Minimum Eligible Age

1 Day

Maximum Eligible Age

90 Days

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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Pediatrix

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Mitchell Cohen, MD

Role: PRINCIPAL_INVESTIGATOR

Pediatrix

Locations

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Jack Jacob

Anchorage, Alaska, United States

Site Status

Banner Good Samaritan Hospital

Phoenix, Arizona, United States

Site Status

St. Joseph's Hospital & Medical Center

Phoenix, Arizona, United States

Site Status

Lawrence and Memorial Hospital

Waterford, Connecticut, United States

Site Status

Swedish American Hospital

Rockford, Illinois, United States

Site Status

Hearts for Hearing

Oklahoma City, Oklahoma, United States

Site Status

Dell Children's Medical Center

Austin, Texas, United States

Site Status

Child Cardiology Associates

Austin, Texas, United States

Site Status

Christus Santa Rosa Westover Hills

San Antonio, Texas, United States

Site Status

Children's Hospital of San Antonio

San Antonio, Texas, United States

Site Status

Alexandria Hospital- Inova Health System

Alexandria, Virginia, United States

Site Status

Pediatrix Audiology Services

Fairfax, Virginia, United States

Site Status

Countries

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United States

References

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Fenrich AL, Shmorhun DP, Martin GC, Young JA, Cohen MI, Kelleher AS, Anyebuno MA, Rider ED, Motta CL, Clark RH. Long QT and Hearing Loss in High-Risk Infants Prospective Study Registry. Pediatr Cardiol. 2022 Dec;43(8):1898-1902. doi: 10.1007/s00246-022-02939-4. Epub 2022 Jun 3.

Reference Type DERIVED
PMID: 35661239 (View on PubMed)

Other Identifiers

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PDX-001-13

Identifier Type: -

Identifier Source: org_study_id

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