Screen-detected Coeliac Disease, a Population Based Study

NCT ID: NCT01695681

Last Updated: 2020-03-11

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

172 participants

Study Classification

INTERVENTIONAL

Study Start Date

2012-10-01

Study Completion Date

2015-04-15

Brief Summary

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The purpose of this study is to determine the prevalence of previously undiagnosed coeliac disease based on a health survey from Tromsø, Norway. Moreover, the health impact of undiagnosed coeliac disease will be examined.

Detailed Description

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Few population-based studies have examined the prevalence of coeliac disease and the impact of undiagnosed coeliac disease on health. Moreover, the number of people with undiagnosed coeliac disease is much higher than the number who know their diagnosis.

The purpose of this study is to determine the prevalence of coeliac disease and the impact of undiagnosed coeliac disease on health.

In a health survey of the population of Tromsø Norway, serological markers of coeliac disease (transglutaminase 2, TG2 and deamidated gliadin antibody test) have been analyzed. Individuals with increased level of one of these markers, will be invited for upper endoscopy with small bowel biopsy examination to confirm the diagnosis of coeliac disease. All persons with screen detected coeliac disease, will be advised to start a gluten free diet.

Health status and Quality of Life will be examined by means of the Gastrointestinal Symptoms Rating Scale (GSRS) and the Psychological General Well-Being Index (PGWBI) respectively.

1. At baseline GSRS and PGWBI will be analyzed in persons with screen detected and biopsy verified coeliac disease and compared with a group of healthy control persons from the health-survey cohort.
2. In a prospective study of the persons with screen detected coeliac disease, health status (GSRS) and Quality of Life will be compared before and after one year on a gluten free diet.

Conditions

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Celiac Disease

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

DIAGNOSTIC

Blinding Strategy

NONE

Study Groups

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Dietary instruction

Gluten-free diet

Group Type OTHER

Gluten-free diet

Intervention Type OTHER

Dietary advice by clinical dietitian

Interventions

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Gluten-free diet

Dietary advice by clinical dietitian

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Increased level of serological markers (Transglutaminase 2 or Deamidated Gliadin) and biopsy verified coeliac disease

Exclusion Criteria

* Previously diagnosed coeliac disease
Minimum Eligible Age

30 Years

Maximum Eligible Age

87 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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The Norwegian Coeliac Society

UNKNOWN

Sponsor Role collaborator

The Gastrointestinal Research Foundation, University Hospital of NorthNorway

UNKNOWN

Sponsor Role collaborator

University Hospital of North Norway

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Jan- M Kvamme, MD PhD

Role: PRINCIPAL_INVESTIGATOR

University of Tromso

Trond Halstensen, MD PhD

Role: STUDY_CHAIR

University of Oslo

Locations

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University hospital of North Norway

Tromsø, , Norway

Site Status

Countries

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Norway

References

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Kvamme JM, Sorbye S, Florholmen J, Halstensen TS. Population-based screening for celiac disease reveals that the majority of patients are undiagnosed and improve on a gluten-free diet. Sci Rep. 2022 Jul 25;12(1):12647. doi: 10.1038/s41598-022-16705-2.

Reference Type DERIVED
PMID: 35879335 (View on PubMed)

Other Identifiers

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2011/1943 (REK)

Identifier Type: -

Identifier Source: org_study_id

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