Mid-to Long-Term Outcomes in Chronic Myeloid Leukemia (CML) Patients With Complete Cytogenetic Response After Imatinib as First Line Therapy

NCT ID: NCT00896129

Last Updated: 2014-01-22

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

448 participants

Study Classification

OBSERVATIONAL

Study Start Date

2010-03-31

Study Completion Date

2010-12-31

Brief Summary

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Rationale: At present, virtually no evidence exists regarding mid to long-term patient-reported health outcomes (e.g., health related quality of life-HRQOL) of CML patients treated with Imatinib.

Purpose: the results of this research will provide preliminary evidence-based data on an number of issues from the patients' perspective, including adherence to therapy issues.

Detailed Description

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OBJECTIVES:

Primary: to investigate a number of mid to long-term HRQOL issues in Chronic Myeloid Leukemia (CML) patients with complete cytogenetic response treated with Imatinib as First Line Therapy.

Secondary evaluation of:

* Psychological wellbeing.
* Fatigue.
* Adherence to therapy issues.
* Symptom burden.
* Possible association between social-demographic and clinical variables with patient reported health outcomes.

OUTLINE:This is a multicenter study.

SAMPLE SIZE:

Sample size estimation has not been performed considering the nature of the study and the lack of preliminary data to hypothesize the number of possible eligible patients in each center.

DURATION OF THE STUDY:

The recruitment period is estimated in approximately 6 to 12 months.

Conditions

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Chronic Myeloid Leukemia

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Study population

HRQOL Survey Packet

Intervention Type OTHER

Questionnaires

Interventions

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HRQOL Survey Packet

Questionnaires

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Age 18 years.
* CML patients meeting the following criteria:

* Started IM therapy in the early chronic phase (ECP).
* Have been undergoing treatment with IM, as first line therapy, for at least three years regardless of the current prescribed dose of IM.
* In complete cytogenetic response (CCgR) and no clinical evidence of disease progression to accelerated phase (AP) or blast crisis (BC).
* Able to read and write Italian.
* Freedom from psychiatric conditions that may confound HRQOL evaluation.
* Informed consent provided.

Exclusion Criteria

* CML patients who were initially diagnosed in the AP or BC or those who started therapy with IM in the late chronic phase (LCP).
* Having received any kind of treatment prior to IM therapy (except for hydroxyurea and/or anagrelide).
* Patients with a new primary malignancy.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Gruppo Italiano Malattie EMatologiche dell'Adulto

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Fabio Efficace, PhD

Role: STUDY_CHAIR

GIMEMA Foundation

Locations

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Ist.Ematologia e Oncologia Medica L.e A. Seragnoli

Bologna, Bologna, Italy

Site Status

Serv. di Ematologia Ist. di Ematologia ed Endocrinologia

Sassari, Sassari, Italy

Site Status

Nuovo ospedale "Torrette"

Ancona, , Italy

Site Status

Unità Operativa Ematologica - Università degli Studi di Bari

Bari, , Italy

Site Status

Ospedali Riuniti

Bergamo, , Italy

Site Status

Sezione di Ematologia e Trapianti Spedali Civili

Brescia, , Italy

Site Status

Azienda ASL di Cagliari

Cagliari, , Italy

Site Status

Ospedale Ferrarotto

Catania, , Italy

Site Status

Azienda Ospedaliera Pugliese Ciaccio

Catanzaro, , Italy

Site Status

Sez.Ematologia e Dip. scienze Biomediche Arcispedale S. Anna

Ferrara, , Italy

Site Status

Clinica Ematologica - Università degli Studi

Genova, , Italy

Site Status

Ematologia 1 - Centro Trapianto di Midollo

Milan, , Italy

Site Status

Azienda Ospedaliera di Rilievo Nazionale "A. Cardarelli"

Napoli, , Italy

Site Status

Azienda Ospedaliera Universitaria - Università degli Studi di Napoli "Federico II"

Napoli, , Italy

Site Status

Ospedale S. Luigi Gonzaga

Orbassano, , Italy

Site Status

Ospedale Cervello

Palermo, , Italy

Site Status

Azienda ASL di Pescara

Pescara, , Italy

Site Status

Università di Pisa, Azienda Ospedaliera Pisana

Pisa, , Italy

Site Status

Ospedale S.Maria delle Croci

Ravenna, , Italy

Site Status

Ospedali Riuniti - Div. di Ematologia

Reggio Calabria, , Italy

Site Status

Università La Sapienza

Roma, , Italy

Site Status

Università Cattolica del Sacro Cuore - Policlinico A. Gemelli

Roma, , Italy

Site Status

U.O. Ematologia, Azienda Ospedaliera Universitaria Senese

Siena, , Italy

Site Status

Azienda USL 9 Treviso - U.O. di Ematologia

Treviso, , Italy

Site Status

Policlinico G.B. Rossi

Verona, , Italy

Site Status

Countries

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Italy

References

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Efficace F, Baccarani M, Breccia M, Alimena G, Rosti G, Cottone F, Deliliers GL, Barate C, Rossi AR, Fioritoni G, Luciano L, Turri D, Martino B, Di Raimondo F, Dabusti M, Bergamaschi M, Leoni P, Simula MP, Levato L, Ulisciani S, Veneri D, Sica S, Rambaldi A, Vignetti M, Mandelli F; GIMEMA. Health-related quality of life in chronic myeloid leukemia patients receiving long-term therapy with imatinib compared with the general population. Blood. 2011 Oct 27;118(17):4554-60. doi: 10.1182/blood-2011-04-347575. Epub 2011 Jul 12.

Reference Type BACKGROUND
PMID: 21750313 (View on PubMed)

Related Links

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Other Identifiers

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QOL-CML0208

Identifier Type: -

Identifier Source: org_study_id

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