Study of rhASB in Patients With Mucopolysaccharidosis VI

NCT ID: NCT00104234

Last Updated: 2010-02-02

Study Results

Results available

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE3

Total Enrollment

39 participants

Study Classification

INTERVENTIONAL

Study Start Date

2004-02-29

Study Completion Date

2006-10-31

Brief Summary

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The purpose of this study is to evaluate the long-term efficacy and safety of rhASB treatment in patients with Mucopolysaccharidosis VI.

Detailed Description

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Conditions

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Mucopolysaccharidosis VI

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

SINGLE_GROUP

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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rhASB/rhASB

N-acetylgalactosamine 4-sulfatase

Group Type OTHER

N-acetylgalactosamine 4-sulfatase

Intervention Type DRUG

Placebo/rhASB

Group Type OTHER

Placebo/rhASB

Intervention Type DRUG

Interventions

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N-acetylgalactosamine 4-sulfatase

Intervention Type DRUG

Placebo/rhASB

Intervention Type DRUG

Other Intervention Names

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rhASB

Eligibility Criteria

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Inclusion Criteria

* Patient consent
* Patient must have successfully completed study ASB-03-05, including having received at least 20 of 24 scheduled weekly infusions and having missed no more then two consecutive infusions
* If female of childbearing potential, patient must have a negative pregnancy test

Exclusion Criteria

* Pregnant or lactating patient
* Patient has received an investigational drug within 30 days prior to study enrollment
* Patient is unwilling or unable to travel to the primary site for periodic assessments
Minimum Eligible Age

7 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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BioMarin Pharmaceutical

INDUSTRY

Sponsor Role lead

Locations

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BioMarin Pharmaceutical Inc.

Novato, California, United States

Site Status

Countries

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United States

References

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Tandon PK, Kakkis ED. The multi-domain responder index: a novel analysis tool to capture a broader assessment of clinical benefit in heterogeneous complex rare diseases. Orphanet J Rare Dis. 2021 Apr 19;16(1):183. doi: 10.1186/s13023-021-01805-5.

Reference Type DERIVED
PMID: 33874971 (View on PubMed)

Other Identifiers

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ASB-03-06

Identifier Type: -

Identifier Source: org_study_id

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