Cultural Adaptation of an Educational Tool in Medullary Thyroid Cancer
NCT ID: NCT07142005
Last Updated: 2025-10-22
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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NOT_YET_RECRUITING
40 participants
OBSERVATIONAL
2025-12-10
2028-03-31
Brief Summary
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Detailed Description
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1. To co-develop a culturally-adapted educational tool for the Latino/Latina MTC population using the previously developed MTCEducate.org as a framework. (Phase 1)
2. To test, refine, and produce a culturally adapted educational prototype and is intended to assess participants' understanding after reviewing the decision aid as part of the iterative testing and refinement process (Phase 2)
Secondary Objectives
1. To assess the tool's acceptability post-production among a broader population of Latino(a) MTC participants and caregivers using the Ottawa Acceptability Scale (Phase 3)
2. To disseminate the educational tool to a broader population of Latino(a)s
3. To summarize the clinico-demographics of educational tool users
Conditions
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Study Design
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COHORT
PROSPECTIVE
Interventions
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Interviews
* Questionnaires/Survey Measures
* Qualitative Instruments
Eligibility Criteria
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Inclusion Criteria
* Males and females; Age: ≥18 years old
* Identified ethnicity as "Hispanic" or "Latino/Latina"
* Ability to read, write, and speak Spanish
* Those who are pregnant are eligible to participate
* Have or will face this decision, including: a. Participant/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in Multi-Institutional Medullary Thyroid Cancer Collaborative Registry; b. Caregiver/family member - of Participant/survivor who has medullary thyroid carcinoma, as nominated by the Participant/survivor
Exclusion Criteria
* Ethnic identity as non-Hispanic or non-Latino/a individual
* Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness as documented in the registry
18 Years
ALL
No
Sponsors
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M.D. Anderson Cancer Center
OTHER
Responsible Party
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Principal Investigators
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Locations
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MD Anderson Cancer Center
Houston, Texas, United States
Countries
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Central Contacts
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Related Links
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MD Anderson Cancer Center
Other Identifiers
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NCI-2025-04498
Identifier Type: OTHER
Identifier Source: secondary_id
2025-0198
Identifier Type: -
Identifier Source: org_study_id
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