Assessing Intellectual and Motor Outcomes in High-risk Infants

NCT ID: NCT06857539

Last Updated: 2025-03-04

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

NOT_YET_RECRUITING

Total Enrollment

600 participants

Study Classification

OBSERVATIONAL

Study Start Date

2025-03-04

Study Completion Date

2029-07-31

Brief Summary

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Cerebral palsy (CP) is a condition when a baby has a brain injury that affects their movement and muscle tone. Some people with CP can have other developmental issues, like learning impairments, but many do not and have isolated issues with their motor skills. Some newborns are at higher risk of developing CP, including babies born prematurely, those who have an injury to their brain, and those who have an abnormal neurological examination. However, most babies with a higher risk of CP do not develop CP. The problem is that doctors can't tell early on who will and who will not develop CP, they can only say who has a risk of it. Therefore, these babies are followed up in out-patient clinics to see how they are progressing, usually by a neonatologist (baby doctor), often a physiotherapist, and some may also be referred to services in the community like the Early Intervention Team. If there is a significant concern, doctors will often perform a scan of the baby's brain to provide more information. Even with all this follow-up, it still usually takes at least 12 months, and can be up to 2 years, to diagnose a child as having CP.

In this study the aim is to try and reduce the age of diagnosis of CP by assessing children in high-risk out-patient clinics using novel and specific examinations. This study is being conducted at several hospitals in Ireland, including Cork University Maternity Hospital (CUMH), The Rotunda Hospital and the Coombe Women and Infants Hospital. It is being coordinated by the In4kids network and will be conducted in the INFANT Centre/ University College Cork (UCC). The study has been funded by Science Foundation Ireland (SFI) and the Cerebral Palsy Foundation, USA.

Detailed Description

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Conditions

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Cerebral Palsy Cerebral Palsy (CP) Cerebral Palsy Children High-risk Infants Intellectual and Developmental Disabilities Motor Impairment Cognitive Development

Study Design

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Observational Model Type

CASE_CONTROL

Study Time Perspective

PROSPECTIVE

Study Groups

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High-Risk Group

This group will have risk factors such as prematurity or hypoxic-ischaemic encephalopathy which put them in the High-Risk cohort

No interventions assigned to this group

Control Group

This group will be healthy, term infants who do not require admission to neonatal intensive care

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

\- (High Risk Group)

Legal guardians must be able and willing to give written informed consent and to comply with the requirements of this study protocol.

All infants considered high risk for a diagnosis of cerebral palsy and neuro-developmental impairment will be eligible, specifically including:

All preterm infants born ≤32 weeks Post Menstrual Age or ≤1500 gm birth weight

All encephalopathic infants

Neurological risk factors (e.g., cerebral birth defect, injury/malformation on neuroimaging, persistently abnormal neurological exam)

(Control Group)

All full term infants will be eligible if:

Term infants born \> 37 weeks gestational age

Not admitted to the NICU

No neurological impairments at birth (no identified congenital or genetic abnormalities)

Exclusion Criteria

\- (High Risk \& Control Groups)

Death prior to discharge from the neonatal unit (High-Risk Infants only)

No parental consent (High-Risk and Control Infants)
Minimum Eligible Age

0 Days

Maximum Eligible Age

4 Months

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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Coombe Women and Infants University Hospital

OTHER

Sponsor Role collaborator

The Rotunda Hospital

OTHER

Sponsor Role collaborator

Cerebral Palsy Foundation

UNKNOWN

Sponsor Role collaborator

Karolinska Institutet

OTHER

Sponsor Role collaborator

University of Pisa

OTHER

Sponsor Role collaborator

Göteborg University

OTHER

Sponsor Role collaborator

University College Cork

OTHER

Sponsor Role lead

Responsible Party

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Dr. Deirdre Murray

Professor of Paediatrics

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Deirdre M Murray

Role: PRINCIPAL_INVESTIGATOR

INFANT Research Centre, University College Cork, Cork, Ireland

Locations

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Cork University Maternity Hospital

Cork, , Ireland

Site Status

INFANT Centre, University College Cork

Cork, , Ireland

Site Status

Coombe Women and Infant's Hospital

Dublin, , Ireland

Site Status

The Rotunda Hospital

Dublin, , Ireland

Site Status

Countries

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Ireland

Central Contacts

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Deirdre Murray Principal Investigator

Role: CONTACT

+353 021 420 5082

Danielle Clifford

Role: CONTACT

+353 021 420 5082

Facility Contacts

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PI

Role: primary

+353 (021) 420 5082

Andreea Pavel

Role: backup

Brian H Walsh

Role: backup

Caroline Aherne

Role: backup

Eugene Dempsey

Role: backup

Eamonn O'Connell

Role: backup

Jean Conway

Role: primary

+353 021 420 5082

Geraldine Boylan

Role: backup

Matilda Biba

Role: backup

Danielle Clifford

Role: backup

Mary Anne Ryan

Role: backup

Sean Mathieson

Role: backup

PI

Role: primary

+353 021 420 5082

Eleanor Molloy

Role: backup

Denise McDonald

Role: backup

PI

Role: primary

+353 021 420 5082

Breda Hayes

Role: backup

Afif El-Khuffash

Role: backup

Related Links

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https://www.infantcentre.ie/2024/03/23/professor-deirdre-murray-inaugural-lecture/

Inaugural lecture: Professor Deirdre Murray, CPF Chair in Early Brain Injury and Cerebral Palsy

Other Identifiers

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DM01

Identifier Type: -

Identifier Source: org_study_id

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