Development and Validation of the Observatory Battery of Common Eye Disorders for Adults With Intellectual Disability

NCT ID: NCT06737627

Last Updated: 2025-06-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

740 participants

Study Classification

OBSERVATIONAL

Study Start Date

2024-04-09

Study Completion Date

2026-01-29

Brief Summary

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Background:

Around 15% of the global population has some form of disability. Rights to obtain proper health care is an emphasis in the United Nationals Convention on the Right of People with Disability. Due to the importance of improving vision health for people with disabilities, studies on how to identify vision problems becomes extremely important in policy formulation for all countries. Among all types of disabilities, people with intellectual disability (ID) are among the ones where vision problems are the hardest to detect.

Currently, no caregiver assessable scales are available, as a result, adults with ID are at high risk of delayed diagnose for common ocular conditions. Objectives: This is a one-year project.

The objective of this study is two folds:

1. To develop an item bank of ocular conditions of adults with ID;
2. To develop a scale for caregivers to detect ocular conditions for adults with ID, and to validate the reliability, construct validity and responsiveness of the scale.

Detailed Description

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Conditions

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Intellectual Disability

Study Design

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Observational Model Type

OTHER

Study Time Perspective

PROSPECTIVE

Study Groups

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Intellectual disability

no intervention

Intervention Type OTHER

no intervention

Interventions

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no intervention

no intervention

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

1. Age 20 and above
2. Primary caregivers for at least one adult with ID (have disability identification or (and) certification).

Exclusion Criteria

1. Unable to communicate in Mandarin or Taiwanese.(Primarycaregivers)
2. Unable to cooperate with eye examination.(ID)
Minimum Eligible Age

20 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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National Taiwan University Hospital

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Care facility

New Taipei City, , Taiwan

Site Status RECRUITING

Care facility

Taipei, , Taiwan

Site Status RECRUITING

Countries

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Taiwan

Central Contacts

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Chiun-Ho Hou, Ph.D

Role: CONTACT

+88623123456 ext. 262131

Facility Contacts

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Chiun-Ho Hou

Role: primary

+8863123456 ext. 274253

Chiun-Ho Hou

Role: primary

+8863123456 ext. 274253

Other Identifiers

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202212036RINA

Identifier Type: -

Identifier Source: org_study_id

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