Treatable Traits in Interstitial Lung Disease

NCT ID: NCT06626438

Last Updated: 2025-10-07

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

NA

Total Enrollment

110 participants

Study Classification

INTERVENTIONAL

Study Start Date

2025-09-03

Study Completion Date

2027-07-31

Brief Summary

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The goal of this clinical trial is to learn if a personalised treatment model of care "treatable traits" can improve quality of life and disease progression in patients with interstitial lung disease.

The main question it aims to answer is, will providing a treatable traits model of care improve health-related quality of life (HRQoL) (primary outcome), symptoms, anxiety, physical activity, and body composition (secondary outcomes).

Researchers will compare the treatable traits model to standard of care.

Participants in both arms will complete surveys, a Dual-Energy X-Ray Absorptiometry (DEXA) and whole-body composition scan, lung function and blood tests. Those in the intervention (TT) arm will be seen in a multidisciplinary clinic where they are seen by an ILD doctor, physiotherapist, psychologist, and dietitian.

Detailed Description

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RCT to compare treatable traits (TT) model of care to standard practice. Primary endpoints reviewed will be health-related QOL as defined by the validated King's Brief Interstitial Lung Disease (KB-ILD) questionnaire. Secondary endpoints will include progression free survival (the time to disease progression or death from any cause), all-cause hospitalisation and mortality, and economic evaluation (comparison of per person direct and indirect costs intervention vs standard of care).

Patients included will be those over 18yo with an interstitial lung disease across hospitals in Western Australia. Target study number will be 55 per arm. Participants will be randomised via an online randomisation system (REDCAP) in a 1:1 fashion to standard or care of the TT MDT clinic. Randomisation will be stratified with a 50% IPF limit and according to severity (mild, moderate and severe from FVC). Participants and clinicians will not be blinded to group allocation. Statistician will be blinded for data analysis.

The embedded clinic will involve multidimensional assessment of patients. At the clinic, the patient will be assessed by a nurse, physiotherapist, psychologist, dietician, and physician. At the end of the clinic the team will meet to discuss each patient and devise a plan to optimise the management of TTs for that individual.

Multidimensional assessment will include demographics, co-morbidities, medications, exposures, blood results, prior investigations, and MDT diagnosis. Questionnaires completed at time of enrolment include KB-ILD (assess QOL), SF26 QOL), Leister Cough questionnaire (Cough), Stop-bang (OSA), mMRC (SOB), fatigue severity score (Fatigue), PGSGASF (nutritional status), perceived stress score (anxiety), GAD score (anxiety), PHQ9 (depression).

Other assessments include lung function, blood testing, sputum assessment, HRCT. Physiotherapy assessments will include 1 minute STS, 6MWT, DEXA scan. Nutritional assessment will be based on BMI and PG-SGA scores.

Interventions provided include standard of care medications (anti-fibrotic and immunosuppressive therapies as per guidelines). Specific physiotherapy intervention will be pulmonary rehabilitation; dietician input will involve dietary counselling and consideration of oral nutritional supplements. Psychology intervention will be self-management strategies or referral to individual psychology.

Conditions

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Interstitial Lung Diseases (ILD)

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

SINGLE

Outcome Assessors

Study Groups

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Treatable Traits model of care

Embedded multidisciplinary clinic. This involves multidimensional assessment of patients with MDT review to determine presence of treatable traits and their specific management.

Group Type EXPERIMENTAL

Treatable traits model of care

Intervention Type OTHER

Embedded multidisciplinary clinic with treatable traits model of care.

Standard of Care

Standard of care where physician-led ILD clinic. All referrals and comorbidity management as guided by physician.

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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Treatable traits model of care

Embedded multidisciplinary clinic with treatable traits model of care.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

Included participants will be aged ≥ 18 years with a physician-confirmed diagnosis of fibrotic ILD. Fibrotic ILD is defined as presence of fibrotic changes on CT in the opinion of the investigator. All ILD subtypes, excluding sarcoidosis, will be included. Participants will need to be able to provide consent to participate and be established on stable ILD treatment for 1 month prior to study initiation.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Fiona Stanley Hospital

OTHER

Sponsor Role collaborator

Sir Charles Gairdner Hospital

OTHER

Sponsor Role collaborator

The University of Western Australia

OTHER

Sponsor Role lead

Responsible Party

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Megan Harrison

Dr.

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Yuben Moodley, MBSS, FRACP, MD, PHD

Role: PRINCIPAL_INVESTIGATOR

The University of Western Australia

Locations

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Sir Charles Gairdner Hospital

Perth, Western Australia, Australia

Site Status NOT_YET_RECRUITING

Fiona Stanley Hospital

Perth, Western Australia, Australia

Site Status RECRUITING

Countries

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Australia

Central Contacts

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Megan Harrison, MBSS (Hons) FRACP

Role: CONTACT

+61 08 6457 3333

Yuben Moodley, MBSS, FRACP, MD, PHD

Role: CONTACT

61086152 2222

Facility Contacts

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Megan Harrison, MBBS FRACP

Role: primary

+6147504307

Lisa Bateman, BSN

Role: backup

+61478 279 934

Sharon Maxwell, Bachelor of Nursing

Role: primary

+61 08 6152 2222

Megan Harrison, MBBS FRACP

Role: backup

61475044307

Provided Documents

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Document Type: Study Protocol and Statistical Analysis Plan

View Document

Document Type: Informed Consent Form

View Document

Other Identifiers

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MRFF2022914

Identifier Type: OTHER_GRANT

Identifier Source: secondary_id

RGS0000006668

Identifier Type: -

Identifier Source: org_study_id

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