A Prospective Non-interventional Observational Study to Observe Long-term Treatment and Outcomes in Pulmonary Arterial Hypertension (PAH) Patients

NCT ID: NCT06445673

Last Updated: 2024-08-07

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ENROLLING_BY_INVITATION

Total Enrollment

110 participants

Study Classification

OBSERVATIONAL

Study Start Date

2024-07-31

Study Completion Date

2030-06-30

Brief Summary

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The goal of this observational study is to learn about the long-term development and outcomes of different treatment patterns of patients who initially participated in the TripleTRE study.

The primary objective of this non-interventional follow-up study is to assess the long-term real-world clinical outcomes, including disease progression and survival rates, in patients who initially participated in and completed the randomized TripleTRE trial.

Planned observation duration per patient is a minimum of 3 years.

Detailed Description

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Conditions

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Pulmonary Arterial Hypertension

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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TripleTRE NIS patients

all patients previously treated within the TripleTRE trial who are willing to participate in this NIS

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

1\. Patients previously participating in the randomized TripleTRE trial who are able and willing to provide a signed informed consent for study participation in NIS

Exclusion Criteria

1. Lost to follow-up patients of TripleTRE study
2. Patients who discontinued all medicinal PAH treatments (e.g. after successful lung transplantation)
3. Patients who withdrew from the initial TripleTRE trial due to significant non-compliance with trial requirements (not adhering to therapy, not coming to hospital visits)
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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AOP Orphan Pharmaceuticals AG

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Ordensklinikum Linz

Linz, , Austria

Site Status

Medical University Vienna

Vienna, , Austria

Site Status

Fakultní Nemocnice Olomouc

Olomouc, , Czechia

Site Status

Všeobecná fakultní nemocnice v Praze

Prague, , Czechia

Site Status

Hôpital Bicêtre-- Assistance Publique Hopitaux de Paris

Paris, , France

Site Status

Hôpitaux Universitaires de Strasbourg

Strasbourg, , France

Site Status

DRK Kliniken Berlin Westend

Berlin, , Germany

Site Status

University Hospital Carl Gustav Carus of Technical University Dresden

Dresden, , Germany

Site Status

Universitätsmedizin Greifswald

Greifswald, , Germany

Site Status

Gottsegen National Cardiovascular lnstitute

Budapest, , Hungary

Site Status

Medical University of Szeged

Szeged, , Hungary

Site Status

Sapienza University of Rome

Rome, , Italy

Site Status

John Paul II Hospital Krakow

Krakow, , Poland

Site Status

Fryderyk Chopin Hospital in European Health Centre Otwock

Otwock, , Poland

Site Status

Emergency Institute for Cardiovascular Diseases Prof. Dr. C.C.Iliescu

Bucharest, , Romania

Site Status

Emergency Clinical County Hospital of Targu Mures

Târgu Mureş, , Romania

Site Status

Hospital Clinic of Barcelona

Barcelona, , Spain

Site Status

Hospital Ramon y Cajal

Madrid, , Spain

Site Status

Countries

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Austria Czechia France Germany Hungary Italy Poland Romania Spain

Other Identifiers

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TREV1-10P.NIS

Identifier Type: -

Identifier Source: org_study_id

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