Developing a Learning COmmunity to Increase eNgagemeNt and Enrollment in Cardiovascular Clinical Trials (CONNECT)

NCT ID: NCT06347484

Last Updated: 2026-01-06

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ACTIVE_NOT_RECRUITING

Clinical Phase

NA

Total Enrollment

1000 participants

Study Classification

INTERVENTIONAL

Study Start Date

2024-05-04

Study Completion Date

2026-10-31

Brief Summary

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The CONNECT: "Developing a learning COmmunity to increase eNgagemeNt and Enrollment in cardiovascular Clinical Trials" is comprehensive, participant-centered learning platform designed to increase diversity in cardiovascular disease research among women and Black and Latino adults. CONNECT will deploy electronic health record (EHR)-informed and community-engaged recruitment approaches to identify and recruit adults with cardiovascular disease or a cardiovascular disease risk factor to join CONNECT. Participants who join CONNECT will receive tailored educational information on cardiovascular health and research participation via text message. Participants will also have the opportunity to be connected to ongoing cardiovascular research studies based on basic demographic information and areas of interest. The educational information will be sent to participants for 12 months. The CONNECT platform will be used to evaluate recruitment methods. The investigators hypothesize the proportion of women and Black and Latin adults enrolled in trials that partner with CONNECT will be higher following the use of CONNECT for recruitment. Investigators also hypothesize that participating in CONNECT will increase participants' clinical trial awareness, trust, and willingness to participate in clinical trials.

Detailed Description

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The CONNECT project, titled "Developing a learning COmmunity to increase eNgagemeNt and Enrollment in cardiovascular Clinical Trials," seeks to establish an comprehensive learning platform aimed at improving diversity and representation in cardiovascular research. It encompasses three primary objectives:

1. Identifying best practices for research recruitment and engagement among women and Black and Latino adults.
2. Increasing participation in cardiovascular health research among women and Black and Latino adults.
3. Improving trust in and awareness of cardiovascular research among women and Black and Latino adults.

A multi-method recruitment campaign will be implemented, utilizing both electronic health record (EHR)-informed and community-based strategies. A sub-study will be conducted to understand the effectiveness of EHR-informed recruitment. This sub-study will randomly assign a subsample of individuals identified in the EHR to one of three outreach modalities: patient portal message, email, and postal mail. Enrollment yield will be calculated for each recruitment method, with logistic regression modeling estimating the odds of enrollment by recruitment outreach type, both overall and among different demographic groups.

Upon enrollment, participants will specify preferences for receiving text messages regarding heart health, research education, and study opportunities. Messaging will focus on cardiovascular health prevention, management strategies, and research processes, with the aim of fostering trust in research within the community. Pre-post surveys will be distributed to assess changes in clinical trial awareness, trust in medical research, and willingness to participate in trials at baseline, 6 months, and 12 months post-enrollment. Interaction terms will be used to evaluate differences in outcomes by race, ethnicity, and sex.

The process for matching participants to research within the CONNECT project involves individual researchers submitting requests to the CONNECT study team for access to the learning community as a recruitment resource, followed by approval Institutional Review Board (IRB) approval. Upon access, researchers can retrieve, and view records of participants matched to respective studies, ensuring access only to data pertinent to the research objectives. Verification of IRB approval is mandated, and the CONNECT study team will request documentation from the individual research team's IRB to confirm compliance before granting access. Researchers using CONNECT must document eligibility and enrollment data for each CONNECT participant matched to the participants study. Proportions of participants matched to and enrolled in ongoing research studies will be tabulated and compared across demographic groups.

Conditions

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Cardiovascular Diseases Hypertension Diabetes Type 2 Stroke Recruitment Overweight and Obesity Hyperlipidemias

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

SINGLE_GROUP

Participants enrolling in CONNECT will receive tailored educational text messages and opportunities to join cardiovascular research studies. Recruitment will occur via electronic health record (EHR)-informed and community-engaged methods. Enrollment yield will be evaluated for all outreach modalities, both overall and by priority populations (women and Black and Latino adults). The study will also assess participant trust in biomedical research, awareness of clinical trials, and willingness to participate at baseline, 6 months, and 12 months.

Sub-study 1: This sub-study will evaluate the effectiveness of three EHR-informed outreach methods: patient portal message, email, and postal mail. Potentially eligible individuals will be identified through EHR query and randomly assigned to one of these methods. Enrollment yield will be assessed by outreach method and priority population.
Primary Study Purpose

OTHER

Blinding Strategy

NONE

Study Groups

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Educational Text-Messages and Connection to Cardiovascular Research Opportunities

All participants who enroll in CONNECT, regardless of method of contact, will receive educational text messages and connection to cardiovascular research opportunities.

Group Type EXPERIMENTAL

Educational Text-Messages and Connection to Cardiovascular Research Opportunities

Intervention Type BEHAVIORAL

All participants who enroll in CONNECT, regardless of method of contact, will receive educational text messages and connection to cardiovascular research opportunities. Text messages will be tailored and include content on cardiovascular health promotion and research participation.

EHR-Informed Recruitment Sub-Study #1, Arm #1: Contact Method, Patient Portal Message

Potential participants will be identified using an EHR query and will be randomized to receive a recruitment message via the patient portal message. This message will invite the participant to join CONNECT.

Group Type ACTIVE_COMPARATOR

EHR-informed Recruitment Method of Contact

Intervention Type BEHAVIORAL

The intervention being studied here is the method of contact (patient portal vs. email vs. postal mail) after being identified in the EHR

EHR-Informed Recruitment Sub-Study #1, Arm #2: Contact Method, Email

Potential participants will be identified using an EHR query and will be randomized to receive a recruitment message via email. This message will invite the participant to join CONNECT.

Group Type ACTIVE_COMPARATOR

EHR-informed Recruitment Method of Contact

Intervention Type BEHAVIORAL

The intervention being studied here is the method of contact (patient portal vs. email vs. postal mail) after being identified in the EHR

EHR-Informed Recruitment Sub-Study #1, Arm #3: Contact Method, Postal Mail

Potential participants will be identified using an EHR query and will be randomized to receive a recruitment message via postal mail. This message will invite the participant to join CONNECT.

Group Type ACTIVE_COMPARATOR

EHR-informed Recruitment Method of Contact

Intervention Type BEHAVIORAL

The intervention being studied here is the method of contact (patient portal vs. email vs. postal mail) after being identified in the EHR

Interventions

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EHR-informed Recruitment Method of Contact

The intervention being studied here is the method of contact (patient portal vs. email vs. postal mail) after being identified in the EHR

Intervention Type BEHAVIORAL

Educational Text-Messages and Connection to Cardiovascular Research Opportunities

All participants who enroll in CONNECT, regardless of method of contact, will receive educational text messages and connection to cardiovascular research opportunities. Text messages will be tailored and include content on cardiovascular health promotion and research participation.

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* Participant is 18 years or older
* Residing in the US
* Self-identifies as having cardiovascular disease or cardiovascular risk factors
* Has a mobile phone and is willing to receive text-messages
* Can read in English or Spanish

Exclusion Criteria

* Unwilling or unable to provide informed consent
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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Morgan State University

OTHER

Sponsor Role collaborator

American Heart Association

OTHER

Sponsor Role collaborator

Johns Hopkins University

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Hailey N Miller, PhD, RN

Role: PRINCIPAL_INVESTIGATOR

Johns Hopkins School of Nursing

Cheryl R Dennison Himmelfarb, PhD, RN, ANP

Role: PRINCIPAL_INVESTIGATOR

Johns Hopkins School of Nursing

Locations

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Johns Hopkins University School of Nursing

Baltimore, Maryland, United States

Site Status

Countries

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United States

References

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Miller HN, Wong E, Byiringiro S, Hussain Z, Guerrero Vazquez M, Lewis-Land C, Skelton B, Curriero S, Foster A, Moghimi F, Tomiwa O, Shaia J, Sheikhattari P, Wang NY, Dennison Himmelfarb CR. CONNECT Platform to Increase Diverse Engagement and Enrollment in Cardiovascular Clinical Research: Rationale, Design, and Lessons Learned in Early Implementation. J Am Heart Assoc. 2025 Aug 19;14(16):e038351. doi: 10.1161/JAHA.124.038351. Epub 2025 Aug 12.

Reference Type DERIVED
PMID: 40792590 (View on PubMed)

Other Identifiers

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IRB00411716

Identifier Type: -

Identifier Source: org_study_id

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