Optimizing Surgical Decisions in Young Adults With Breast Cancer

NCT ID: NCT06275126

Last Updated: 2025-09-09

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

NA

Total Enrollment

800 participants

Study Classification

INTERVENTIONAL

Study Start Date

2024-03-13

Study Completion Date

2027-08-31

Brief Summary

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The goal of this study is to understand and improve the breast surgical decision-making process for young women newly diagnosed with breast cancer. As part of this study, the investigators will evaluate the impact and use a web-based tool called CONSYDER that is designed to provide useful information to young breast cancer patients. It is also meant to improve communication between young women and their surgeons with the purpose of helping patients make appropriate surgical decisions.

Participants will complete surveys approximately within 1 week of the surgical consult and approximately 6 months after surgery. Patients who receive neoadjuvant chemotherapy will also be surveyed after the completion of neoadjuvant treatment but prior to surgery. Some patients will be invited for an interview after their surgery as part of the evaluation. A subset of patients/surgeons will also have their surgical consultation audio-recorded.

Detailed Description

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Primary objectives:

* To test the effectiveness of the CONSYDER decision support tool on reducing decisional conflict prior to breast cancer surgery.
* To evaluate the implementation of and mechanisms of use for CONSYDER.

Secondary Objectives:

* To determine the impact of CONSYDER on decision-making preferences, breast cancer knowledge, treatment goals and preferences, anxiety, decisional regret, and self-efficacy in communication.

Exploratory Objectives:

* To explore whether CONSYDER impacts surgical choice.

OUTLINE: This is a multi-site cluster randomized trial using a stepped wedge design. Approximately 800 women will be recruited at 4 study sites (Weill Cornell Medicine, Yale Cancer Center, Dana-Farber Cancer Institute, Duke Cancer Institute), including network affiliate sites, over an approximate 30-month period. All sites will have a 6-month "run-in" period where patients will not be sent CONSYDER. The 6-month blocks may be extended if recruitment targets are not met. Sites will be randomized to begin delivery of CONSYDER to all newly diagnosed women, age ≤44, with Stage 0-III breast cancer as part of routine clinical care; young women will have access to the website whether or not they consent to research study participation.

Conditions

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Breast Cancer Stage 0 Breast Cancer Stage I Breast Cancer Stage II Breast Cancer Stage III

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

CROSSOVER

The study is a pragmatic, Type II hybrid effectiveness-implementation, stepped-wedge design that will incorporate a mixed-methods approach to test the efficacy and evaluate the implementation of the CONSYDER intervention
Primary Study Purpose

HEALTH_SERVICES_RESEARCH

Blinding Strategy

NONE

Study Groups

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Usual care

Prior to institutional crossover, participants receive care as per usual for 6 months ("run-in" period) and are not sent CONSYDER.

Group Type NO_INTERVENTION

No interventions assigned to this group

CONSYDER decision aid

Web-based breast cancer surgery decision aid

Group Type OTHER

CONSYDER decision aid

Intervention Type OTHER

Web-based breast cancer surgery decision aid

Interventions

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CONSYDER decision aid

Web-based breast cancer surgery decision aid

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Female aged 18-44
* New diagnosis of Stage 0, 1, 2, or 3 unilateral breast cancer
* English or Spanish speaking

Exclusion Criteria

* Diagnosis of de novo Stage 4 breast cancer
* Recurrent early-stage breast cancer
* Bilateral breast cancer
Minimum Eligible Age

18 Years

Maximum Eligible Age

44 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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National Institutes of Health (NIH)

NIH

Sponsor Role collaborator

National Cancer Institute (NCI)

NIH

Sponsor Role collaborator

Weill Medical College of Cornell University

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Shoshana Rosenberg, ScD, MPH

Role: PRINCIPAL_INVESTIGATOR

Weill Medical College of Cornell University

Rachel Greenup, MD, MPH

Role: PRINCIPAL_INVESTIGATOR

Yale University

Locations

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Yale Cancer Center

New Haven, Connecticut, United States

Site Status RECRUITING

Dana-Farber Cancer Institute

Boston, Massachusetts, United States

Site Status RECRUITING

Weill Cornell Medicine

New York, New York, United States

Site Status RECRUITING

Duke Cancer Institute

Durham, North Carolina, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Shoshana Rosenberg, ScD, MPH

Role: CONTACT

646-962-8041

Darima Dorzhieva

Role: CONTACT

646-962-8666

Facility Contacts

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Rachel Greenup, MD, MPH

Role: primary

203-737-2966

Ann Partridge, MD, MPH

Role: primary

617-632-3800

Shoshana Rosenberg, ScD, MPH

Role: primary

646-962-8041

Darima Dorzhieva

Role: backup

646-962-8666

Jennifer Plichta, MD, MS

Role: primary

919-681-9156

Other Identifiers

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R01CA256877-01A1

Identifier Type: NIH

Identifier Source: secondary_id

View Link

23-08026433

Identifier Type: -

Identifier Source: org_study_id

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