Living Well After Breast Surgery

NCT ID: NCT03834532

Last Updated: 2021-11-02

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

17 participants

Study Classification

INTERVENTIONAL

Study Start Date

2019-02-18

Study Completion Date

2021-06-11

Brief Summary

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Decision making about whether to have breast reconstruction after mastectomy can be difficult, and previous studies have found that many women are not well informed about their options. Patient decision aids can improve decision quality for a variety of health conditions. This pilot randomized study seeks to determine how a patient decision aid about breast reconstruction affects the quality of decisions about reconstruction including patient knowledge, concordance between preferences and treatment, and decisional regret.

Detailed Description

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Enrolled participants will be randomized to 1 of 2 arms; participants may receive a breast reconstruction decision aid or an educational website on healthy living with breast cancer.

Participants will complete up to three surveys; a baseline survey before viewing the decision aid or website, a second survey immediately after viewing the decision aid or website, and a third survey six months after surgery. Tablets will be made available to participants at the study site through which they can complete the surveys and view the decision aid or website. Participants will have the options of viewing the decision aid or website outside of the study site, and completing the three surveys electronically or on paper.

The baseline survey and second survey will each take approximately 45 minutes for participants to complete. The third survey will take approximately 30 minutes for participants to complete.

Conditions

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Breast Cancer Female Stage I Breast Cancer Stage II Breast Cancer Stage III Breast Cancer Ductal Carcinoma in Situ Ductal Breast Carcinoma Lobular Breast Carcinoma

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Participants enrolled in the study will complete a baseline survey. Participants will then be randomized to receive a breast reconstruction decision aid or an educational website on healthy living with breast cancer. Participants will complete a second survey after viewing the assigned material. Participants may be invited to complete a third survey six months after surgery.
Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

SINGLE

Participants
Participants enrolled in the study will complete a baseline survey. Participants will then be randomized to receive a breast reconstruction decision aid or an educational website on healthy living with breast cancer. Participants will complete a second survey after viewing the assigned material. Participants may be invited to complete a third survey six months after surgery.

Study Groups

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Intervention

Participants randomized to the intervention group will receive a breast reconstruction decision aid. Participants will be provided instructions on how to access and navigate the decision aid. Participants will access the decision aid through a website link that is emailed to them or on a tablet at the study site.

Group Type EXPERIMENTAL

Breast reconstruction decision aid

Intervention Type OTHER

The breast reconstruction decision aid is a web-based, interactive tool that participants will use after the first breast surgery visit and before a plastic surgery visit or surgery. The decision aid provides information about post-mastectomy breast reconstruction and helps the participant clarify their preferences related to the procedure.

Control

Participants randomized to the control group will receive two website pages on healthy living with breast cancer from an educational website. Participants will be provided instructions on how to access and navigate the website pages. Participants will access the website pages through a link that is emailed to them or on a tablet at the study site.

Group Type ACTIVE_COMPARATOR

Educational website

Intervention Type OTHER

The educational website contains information on healthy living with breast cancer including, physical activity and nutrition.

Interventions

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Breast reconstruction decision aid

The breast reconstruction decision aid is a web-based, interactive tool that participants will use after the first breast surgery visit and before a plastic surgery visit or surgery. The decision aid provides information about post-mastectomy breast reconstruction and helps the participant clarify their preferences related to the procedure.

Intervention Type OTHER

Educational website

The educational website contains information on healthy living with breast cancer including, physical activity and nutrition.

Intervention Type OTHER

Other Intervention Names

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Web-based tool Website

Eligibility Criteria

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Inclusion Criteria

* Female
* Adult (18 years or older)
* New diagnosis of incident or recurrent Stage I-III ductal or lobular carcinoma, or Ductal Carcinoma in Situ (DCIS)
* Not yet had mastectomy
* Considering or planning to have mastectomy
* Able to read and speak English
* Competent to make health care decisions

Exclusion Criteria

* Male
* Age less than 18 years
* Diagnosis of stage IV breast cancer, inflammatory breast cancer, phyllodes, or sarcoma
* Already had mastectomy for this diagnosis
* Planning to have breast conservation therapy
* Not being treated by a Texas Oncology surgeon or oncologist
* Not able to read and speak English
* Not competent to make health care decisions
Minimum Eligible Age

18 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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Ohio State University

OTHER

Sponsor Role collaborator

Washington University School of Medicine

OTHER

Sponsor Role collaborator

University of Texas at Austin

OTHER

Sponsor Role lead

Responsible Party

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Michael P Pignone

Professor of Medicine

Responsibility Role PRINCIPAL_INVESTIGATOR

Locations

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Texas Oncology

Austin, Texas, United States

Site Status

Countries

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United States

Other Identifiers

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2018-05-0009

Identifier Type: -

Identifier Source: org_study_id