Burden of Disease and Living Situation in Desmoid Patients
NCT ID: NCT06258421
Last Updated: 2025-08-24
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
100 participants
OBSERVATIONAL
2023-10-01
2024-09-01
Brief Summary
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Prevalent and incident desmoid patients will be identified at the University Hospital Mannheim and checked for eligibility. Quality of life and patient-reported data are collected by means of written questionnaires. Medical data is collected from patient files in the clinics. The aim is to include 100 patients. Descriptive analyses of the variables collected and regression models are planned as statistical analysis.
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Detailed Description
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Conditions
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Study Design
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CASE_ONLY
PROSPECTIVE
Study Groups
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Desmoid Tumor Patients
People who have been diagnosed with a desmoid tumor after the age of 18
No Intervention
Observatory Study
Interventions
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No Intervention
Observatory Study
Eligibility Criteria
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Inclusion Criteria
* Age ≥18 years at diagnosis
Exclusion Criteria
18 Years
ALL
No
Sponsors
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SOS Desmoid e.V.
UNKNOWN
Universitätsmedizin Mannheim
OTHER
Technische Universität Dresden
OTHER
Responsible Party
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Principal Investigators
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Martin Eichler, Dr., M.Sc. / PHD
Role: PRINCIPAL_INVESTIGATOR
Universitätsklinikum Carl-Gustav-Carus Dresden
Locations
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Universitätsklinikum Carl-Gustav-Carus Dresden
Dresden, Saxony, Germany
Countries
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Other Identifiers
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SR+BO-EK-388092023
Identifier Type: -
Identifier Source: org_study_id
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