Support Strategies for Parents During the First Year Following Their Child's Diagnosis of Sickle Cell Disorder
NCT ID: NCT06251843
Last Updated: 2024-02-09
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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NOT_YET_RECRUITING
30 participants
OBSERVATIONAL
2024-05-31
2025-02-28
Brief Summary
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Aim: Develop strategies to improve support for parents during their child's first year of life following a SCD diagnosis to encourage early engagement with health services.
Method: Comprises two stages: (i) Determine why parents choose to engage with support or not (ii) Use this information to co-design strategies to ensure greater accessibility of support for parents during their child's first year of life.
Patient and Public Involvement: We are working with Sickle Cell Society and parents of children with SCD. Dissemination: Findings will be shared with support groups, charities, health professionals and academics.
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Detailed Description
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Conditions
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Study Design
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OTHER
PROSPECTIVE
Study Groups
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Parents of children with sickle cell disorder
Parents whose child has been diagnosed with sickle cell disorder in the last 36 months
No interventions assigned to this group
Health professionals
Health professionals involved in the care of children sickle cell disorder
No interventions assigned to this group
Eligibility Criteria
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Inclusion Criteria
* Health professionals involved in the care of children with sickle cell disorder
Exclusion Criteria
* Health professionals who do not have experience of caring for children with sickle cell disorder.
18 Years
99 Years
ALL
Yes
Sponsors
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British Academy
UNKNOWN
Sickle Cell Society
UNKNOWN
King's College Hospital NHS Trust
OTHER
Guy's and St Thomas' NHS Foundation Trust
OTHER
King's College London
OTHER
Responsible Party
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Central Contacts
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Other Identifiers
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Support_SCD
Identifier Type: -
Identifier Source: org_study_id
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