The Coping With and Caring for Infants With Special Needs Intervention in Down Syndrome Infants

NCT ID: NCT06197035

Last Updated: 2024-04-01

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

NA

Total Enrollment

40 participants

Study Classification

INTERVENTIONAL

Study Start Date

2024-03-10

Study Completion Date

2024-10-20

Brief Summary

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The objective is to compare the impact of standard infant physical therapy and the family-centered program, Coping with and Caring for Infants with Special Needs (COPCA), on infants born with Down syndrome. This is a randomized controlled trial that will be carried out in the patients' homes and outpatient settings in Spain between January 2024 and March 2024. An evaluation battery will be used that includes child and family outcomes and video analysis of therapy sessions.

The Infant Motor profile will be the primary outcome instrument.

Detailed Description

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Conditions

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Down Syndrome Family Physical Disability

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Two intervention groups, a group with COPCA intervention and a group with standard physiotherapy
Primary Study Purpose

TREATMENT

Blinding Strategy

DOUBLE

Investigators Outcome Assessors

Study Groups

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COPCA (Coping With and Caring for Infants With Special Needs) Intervention

The intervention will be delivered by COPCA coaches who follow the programme's theoretical and practical principles. Caregivers learnt how to stimulate their infant's development by challenging their motor behaviour with trial and error experiences.

This aim to empower the caregivers' competencies to stimulate the infant's daily development, by increasing their motor repertoire.

and enhancing their capacity to adapt movements to situations.

Group Type EXPERIMENTAL

Coping With and Caring for Infants With Special Needs

Intervention Type PROCEDURE

The early intervention programme for infants and young children focuses on the active inclusion of the whole family. The coaching of parents is a central component. Parents learn how they can independently and optimally support their child's development as part of the child's everyday life. The programme was developed at the beginning of the 2000s in the Netherlands by child physiotherapist Tineke Dirks and professor of developmental neurology Mijna Hadders-Algra.

Standard physiotherapy

Standard care will be based on what paediatric physiotherapists generally assume to be useful to promote the development of infants with special needs. Standard care is heterogeneous and eclectic, uses parent training and often includes components of neurodevelopmental treatment with hands-on techniques.

Group Type ACTIVE_COMPARATOR

Standard Physiotherapy

Intervention Type PROCEDURE

Pediatric physiotherapy techniques aimed at improving the development of the baby and young child from manual therapy tools, or baby management.

Interventions

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Coping With and Caring for Infants With Special Needs

The early intervention programme for infants and young children focuses on the active inclusion of the whole family. The coaching of parents is a central component. Parents learn how they can independently and optimally support their child's development as part of the child's everyday life. The programme was developed at the beginning of the 2000s in the Netherlands by child physiotherapist Tineke Dirks and professor of developmental neurology Mijna Hadders-Algra.

Intervention Type PROCEDURE

Standard Physiotherapy

Pediatric physiotherapy techniques aimed at improving the development of the baby and young child from manual therapy tools, or baby management.

Intervention Type PROCEDURE

Eligibility Criteria

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Inclusion Criteria

* Babies with Down syndrome
* Families involved in Pediatric Physical Therapy

Exclusion Criteria

* Other associated developmental disorders
* To not speak Spanish
* Do not sign informed consent
Minimum Eligible Age

1 Month

Maximum Eligible Age

18 Months

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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University of Seville

OTHER

Sponsor Role lead

Responsible Party

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Elena Piñero Pinto

Professor

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Elena Pinero-Pinto, PhD

Role: STUDY_DIRECTOR

University of Seville

Locations

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University of Seville

Seville, , Spain

Site Status RECRUITING

Countries

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Spain

Central Contacts

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Elena Pinero-Pinto, PhD

Role: CONTACT

+34655108763

Facility Contacts

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Piñero Pinto, PhD

Role: primary

+34655108763

Other Identifiers

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USeville-EPINTO

Identifier Type: -

Identifier Source: org_study_id

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