A Study Of PGN-EDO51 In Participants With Duchenne Muscular Dystrophy Amenable To Exon 51-Skipping Treatment

NCT ID: NCT06079736

Last Updated: 2025-12-02

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

TERMINATED

Clinical Phase

PHASE2

Total Enrollment

7 participants

Study Classification

INTERVENTIONAL

Study Start Date

2024-01-03

Study Completion Date

2025-08-28

Brief Summary

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The study consists of 3 periods: A Screening Period (up to 45 days), a Multiple Ascending Dose (MAD) Period (16 weeks), and a Long-Term Extension (LTE) Period (108 weeks).

The primary purpose of the MAD period is to evaluate the safety and tolerability of multiple ascending intravenous (IV) doses of PGN-EDO51 administered to participants with Duchenne Muscular Dystrophy (DMD). The primary purpose of the LTE period is to evaluate the long-term safety and tolerability of PGN-EDO51 in participants who have completed the MAD period.

Detailed Description

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Conditions

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Duchenne Muscular Dystrophy

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

SEQUENTIAL

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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PGN-EDO51 at Dose Level 1 every 4 weeks

Group Type EXPERIMENTAL

PGN-EDO51

Intervention Type DRUG

IV infusion

PGN-EDO51 at Dose Level 2 every 4 weeks

Group Type EXPERIMENTAL

PGN-EDO51

Intervention Type DRUG

IV infusion

Interventions

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PGN-EDO51

IV infusion

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* Confirmed diagnosis of DMD able to be corrected by skipping Exon 51
* Body weight at least 18kg at Screening
* Performance of Upper Limb (PUL) 2.0 entry score of at least 4 at Screening (assessing upper limb function in ambulant and non-ambulant individuals with DMD)

Exclusion Criteria

* Known history or presence of any clinically significant conditions that may interfere with study safety assessments
* Treatment with any gene replacement therapy for the treatment of DMD at any time
* Current or recent systemic infection within 2 weeks prior to Screening or infection requiring IV antibiotics within 4 weeks prior to Screening
* Recent surgery requiring anesthesia within 3 months prior to Screening or expected surgery requiring general anesthesia during the study
Minimum Eligible Age

6 Years

Maximum Eligible Age

16 Years

Eligible Sex

MALE

Accepts Healthy Volunteers

No

Sponsors

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PepGen Inc

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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British Columbia Children's Hospital

Vancouver, British Columbia, Canada

Site Status

Stan Cassidy Centre for Rehabilitation

Fredericton, New Brunswick, Canada

Site Status

Children's Hospital of Eastern Ontario (CHEO)

Ottawa, Ontario, Canada

Site Status

The Hospital for Sick Children (SickKids)

Toronto, Ontario, Canada

Site Status

CHU de Québec

Québec, Quebec, Canada

Site Status

Countries

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Canada

Other Identifiers

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PGN-EDO51-102

Identifier Type: -

Identifier Source: org_study_id

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