Juvenile Recurrent Respiratory Papillomatosis: Establishment of a French National Cohort (PRR : National Cohort " REPA ")
NCT ID: NCT06000527
Last Updated: 2023-08-21
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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RECRUITING
200 participants
OBSERVATIONAL
2022-10-01
2032-09-30
Brief Summary
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Detailed Description
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There are currently no French national epidemiological data on this disease. The data collected by the reference centers will enable us to gain a better understanding of this pathology in terms of epidemiology, risk factors, genetic susceptibility and clinical manifestations, as well as to significantly study the efficacy of the various existing therapies and preventive measures, in order to establish a clear, standardized and optimal guideline.
Conditions
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Study Design
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COHORT
PROSPECTIVE
Eligibility Criteria
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Inclusion Criteria
* Followed in the :
* The MALO CRMR
* One of the MALO network's CCMRs
* One of the main correspondent centers
Exclusion Criteria
* Parents of minor patients objecting to the collection of their child's personal data
ALL
No
Sponsors
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Imagine Institute
OTHER
Responsible Party
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Locations
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hôpital Necker Enfants malades
Paris, , France
Countries
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Central Contacts
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Facility Contacts
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Other Identifiers
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HJ-20-REPA
Identifier Type: -
Identifier Source: org_study_id
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