HPV Self-testing in Transgender Individuals

NCT ID: NCT05883111

Last Updated: 2025-03-17

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

NA

Total Enrollment

100 participants

Study Classification

INTERVENTIONAL

Study Start Date

2024-02-29

Study Completion Date

2028-08-28

Brief Summary

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Human papillomavirus (HPV) is a common virus that spreads through skin-to-skin contact. Some HPV types can cause changes in cells that lead to cancer and are known as 'high-risk' HPV (hrHPV). hrHPV is linked to cancers of the cervix (opening of the womb), throat, and anus (exit of the bowel).

It is not known if transgender people (individuals whose gender identity does not align with their sex assigned at birth) are at increased risk of hrHPV or cancers caused by hrHPV compared to cisgender people (individuals whose gender identity does align with their birth sex). There is also little knowledge about HPV in the vagina for transgender women who have surgery to make one.

Transgender men may be at higher risk of cervical cancer than cisgender women because they are less likely to go for screening. This can be because of physical discomfort and emotional distress during screening when a swab is taken directly from the cervix.

The investigators seek to examine how common hrHPV is in transgender people in different parts of the body. In the study, participants will take swabs from the vagina and anus, a urine sample, and use mouthwash. Transgender men will also have an extra swab taken by a clinician as part of routine cervical screening. This is to see if the swab from the vagina is as good as the one from the cervix for finding cells that might lead to cancer. Participants will also take an online survey to measure the acceptability of self-sampling compared to clinician sampling.

This research can inform HPV prevalence and decision-making about HPV screening among transgender people.

Detailed Description

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Conditions

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HPV Infection

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

PREVENTION

Blinding Strategy

NONE

Study Groups

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Trans men and non-binary people with a cervix

Participants will have a clinician-collected cervical screening sample and then collect the following self-samples for research: Vaginal swab, Anal swab, Oral rinse, and Urine sample for the detection of HPV detection.

Group Type OTHER

HPV DNA methylation assay

Intervention Type DIAGNOSTIC_TEST

HPV DNA methylation assay to detect HPV positivity, HPV genotype, and HPV methylation.

Trans women and non-binary people

Participants will collect the following self-samples for research in the clinic: Vaginal swab, Anal swab, Oral rinse, and Urine sample for the detection of HPV detection. Participants will collect the following self-samples for research at home: Vaginal swab, Anal swab, and Oral rinse sample for the detection of HPV detection.

Group Type EXPERIMENTAL

HPV DNA methylation assay

Intervention Type DIAGNOSTIC_TEST

HPV DNA methylation assay to detect HPV positivity, HPV genotype, and HPV methylation.

Interventions

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HPV DNA methylation assay

HPV DNA methylation assay to detect HPV positivity, HPV genotype, and HPV methylation.

Intervention Type DIAGNOSTIC_TEST

Eligibility Criteria

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Inclusion Criteria

* Identify as transgender or non-binary
* Be between 25 - 65 years of age
* Be registered with a general practitioner
* Have an intact cervix
* Have used testosterone therapy within the last year
* Be willing, and able to understand and consent to study procedures


* Identify as transgender or non-binary
* Be 18 years of age or older
* Have undergone vaginoplasty by any method at least 1 year ago
* Be willing, and able to understand and consent to study procedures

Exclusion Criteria

* Have a variation of sex characteristics (also known as a disorder of sex development)
* Have an allergy to any of the ingredients in the oral rinse (Scope)
* Be diagnosed with, or under investigation for, an inflammatory bowel disease (e.g., ulcerative colitis, Crohn's disease). This does not include irritable bowel syndrome - participants with this are eligible to enroll.
* Be a member of a vulnerable population, which includes pregnant people, fetuses, children, prisoners, or anyone unable to independently offer consent.
Minimum Eligible Age

21 Years

Maximum Eligible Age

65 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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National Cancer Institute (NCI)

NIH

Sponsor Role collaborator

Queen Mary University of London

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Sarah S Jackson, PhD

Role: PRINCIPAL_INVESTIGATOR

National Cancer Institute (NCI)

Alison M Berner, MBBS, PhD

Role: PRINCIPAL_INVESTIGATOR

Queen Mary University of London

Locations

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University Hospitals Sussex NHS Foundation Trust Sexual Health Service

Brighton, , United Kingdom

Site Status RECRUITING

Ambrose King Centre, Barts Health NHS Trust

London, , United Kingdom

Site Status RECRUITING

CliniQ, Caldicott Centre, Kings College Hospitals

London, , United Kingdom

Site Status RECRUITING

Countries

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United Kingdom

Central Contacts

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Alison M Berner

Role: CONTACT

44 7738 011636

Facility Contacts

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Sophie Ross

Role: primary

Lisa Barbour

Role: backup

James Hand

Role: primary

Kyle Ring

Role: backup

Lucy Campbell

Role: primary

Ellen Adams

Role: backup

References

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Jackson SS, O'Callaghan S, Ward E, Orkin CM, Clarke MA, Berner AM. Rationale and design of the Self-TI Study protocol: a cross-sectional human papillomavirus self-testing pilot study among transgender adults in England. BMJ Open. 2024 Jul 4;14(7):e086099. doi: 10.1136/bmjopen-2024-086099.

Reference Type DERIVED
PMID: 38964803 (View on PubMed)

Other Identifiers

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319364

Identifier Type: -

Identifier Source: org_study_id

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