Assessment and Prevention of Caregiver Burden in Oncology

NCT ID: NCT05750836

Last Updated: 2023-06-28

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

NOT_YET_RECRUITING

Clinical Phase

NA

Total Enrollment

250 participants

Study Classification

INTERVENTIONAL

Study Start Date

2023-07-31

Study Completion Date

2027-06-30

Brief Summary

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The goal of this randomized, open and controlled supportive care study is to see if we can reduce the burden on the caregiver by offering the caregiver systematic and regular support from the nurse (APN, nurse coordinator in French health care organisations) compared to a support focused on the patient. At the same time, we will also evaluate the impact of this personalised support for the caregiver on their anxiety and quality of life.

Participants will caregivers of a patient who started a line (any line) of systemic treatment for a solid tumour since less than 3 months or in an active palliative situation since less than 1 month.

Researchers will compare 2 groups : a group where caregivers benefit from specific nursing support and a group of caregivers with no specific nursing support.

The specific support includes 3 mandatory on-site nursing consultations with the patient's caregiver and interviews once a month with a nurse either by phone, on-site consultation or teleconsultation.

Detailed Description

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Conditions

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Oncology Caregiver Burden

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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Specific nursing support

The caregivers benefit from specific nursing support.

Group Type EXPERIMENTAL

Specific nursing support

Intervention Type OTHER

* 3 mandatory on-site nursing consultations with the patient's caregiver at inclusion, 6 months and 12 months post-randomisation.The caregivers will complete the questionnaires (Zarit scale, Hospital Anxiety and Depression scale, Medical Outcome Study Short Form - 36, Caregiver's satisfaction).
* interviews once a month with a nurse either by phone, on-site consultation or teleconsultation.

Nurses assess the general health of the caregiver and Identify the socio-professional situation of the caregiver

No specific nursing support

Caregivers do not receive any specific support from the nurses.

Group Type ACTIVE_COMPARATOR

Non-specific nursing support

Intervention Type OTHER

Caregivers will only have to complete on site Health indicators, Zarit scale, Hospital Anxiety and Depression scale, Medical Outcome Study Short Form - 36 at inclusion, 6 months and 12 months post-randomisation.

Interventions

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Specific nursing support

* 3 mandatory on-site nursing consultations with the patient's caregiver at inclusion, 6 months and 12 months post-randomisation.The caregivers will complete the questionnaires (Zarit scale, Hospital Anxiety and Depression scale, Medical Outcome Study Short Form - 36, Caregiver's satisfaction).
* interviews once a month with a nurse either by phone, on-site consultation or teleconsultation.

Nurses assess the general health of the caregiver and Identify the socio-professional situation of the caregiver

Intervention Type OTHER

Non-specific nursing support

Caregivers will only have to complete on site Health indicators, Zarit scale, Hospital Anxiety and Depression scale, Medical Outcome Study Short Form - 36 at inclusion, 6 months and 12 months post-randomisation.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Caregiver designated by the patient;
* Caregiver of a patient who started a line (any line) of systemic treatment for a solid tumour since less than 3 months or in an active palliative situation since less than 1 month;
* Caregiver of patient already cared for by a nurse before inclusion or going to start a nursing follow-up;
* Caregiver of a patient with a score ≥2 of social fragility and/or psychological fragility and/or nutritional fragility and/or complexity;

Exclusion Criteria

* Patient whose life expectancy is assumed to be \< 6 months;
* Patient living in an institution (EHPAD, MAS, SSR, MCO, USLD) at inclusion;
* Caregiver declared as having a pathology that could alter his/her capacity to support (psychiatric history, dementia…) or under guardianship.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Institut Cancerologie de l'Ouest

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Céline THOMAS, Nurse

Role: PRINCIPAL_INVESTIGATOR

Institut de Cancérologie de l'Ouest

Locations

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CH Cholet

Cholet, , France

Site Status

Centre Antoine Lacassagne

Nice, , France

Site Status

Centre Henri Bequerel

Rouen, , France

Site Status

Institut de Cancérologie de l'Ouest

Saint-Herblain, , France

Site Status

CH Mémorial de Saint Lo

Saint-Lô, , France

Site Status

Countries

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France

Central Contacts

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Céline THOMAS, Nurse

Role: CONTACT

(0)2 40 67 97 49 ext. +33

Emilie DEBEAUPUIS

Role: CONTACT

(0)240679844 ext. +33

Facility Contacts

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Margot NOBLECOURT, MD

Role: primary

julie OUDIN, Nurse

Role: primary

Amel CONSTANTIN, Nurse

Role: primary

Céline THOMAS, Nurse

Role: primary

Emillie LEFEVRE, Nurse

Role: primary

Other Identifiers

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ICO-2022-03

Identifier Type: -

Identifier Source: org_study_id

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