A Patient Consensus for the Research in Supportive Care in French Cancer Care Centers: the CyPRES Project

NCT ID: NCT03320161

Last Updated: 2021-11-04

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

604 participants

Study Classification

OBSERVATIONAL

Study Start Date

2018-10-10

Study Completion Date

2021-05-26

Brief Summary

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In oncology a number of supportive care therapies are proposed to patients. This study will identify the different therapies and prioritize these therapies from the patients' perspectives. This study will provide a framework for optimizing supportive care strategies and identifying those therapies that need to be validated by clinical trials.

Detailed Description

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In oncology, supportive care should be used along with curative treatment or palliative care in order to improve patients' health-related quality of life, overall survival and to better support treatment side effects as well as the disease evolution. Unfortunately, they are not widely used in clinical practice.

A direct assessment of the needs perceived unmet by patients could allow to assess the magnitude of expectations to better target treatments as example. A prospective assessment of the expectations and needs of the patients is thus essential. This would also allow help to highlight the convergence between supportive care proposed and used and those expected by patients. The first step to understanding how to optimize the use of resources and to improve the quality of care is to identify patient's expectations. Moreover, it is now well recognized that patients should play a key role in the research and that their active participation in research can increase the relevance of the research.

In this context, the CyPRES project aims to:

1. assess through national consensus the patients' expectations in terms of supportive care in order to help both clinicians and health care services;
2. prioritize them and to arrange resources according to priority needs identified;
3. identify supportive care for which no previous research (evidence-based medicine) has demonstrated their usefulness. A randomized clinical trial will thus be proposed;
4. Involve patients in the written, conduct and analyses, as well as communications of the randomized clinical trial.

Conditions

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Cancer Patients

Keywords

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Supportive care Cancer Health-related quality of life Consensus Participative approach Patient involvement DELPHI method

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

* patients supported for cancer
* patients of ERI, Espaces Ligue (french cancer care centers) or patient associations
* patients aged at least 18 years old

Exclusion Criteria

* Not applicable
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Ligue contre le cancer, France

OTHER

Sponsor Role collaborator

French National Platform Quality of Life and Cancer

UNKNOWN

Sponsor Role collaborator

Association Francophone des Soins Oncologiques de Support

UNKNOWN

Sponsor Role collaborator

UNICANCER

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Amélie Anota, PhD

Role: PRINCIPAL_INVESTIGATOR

Mehodology and Quality of Life in Oncology unit, CHRU Besançon, France

Locations

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Ligue Nationale Contre le Cancer - Comité de la Somme

Amiens, , France

Site Status

ICO - Site Paul Papin

Angers, , France

Site Status

Ligue Nationale Contre le Cancer - Comité du Maine-et-Loire

Angers, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de Charente

Angoulême, , France

Site Status

Ligue Nationale Contre le Cancer - Comité du Val d'Oise

Argenteuil, , France

Site Status

Ligue Nationale Contre le Cancer - Comité des Pyrénées Atlantiques

Bayonne, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de l'Oise

Beauvais, , France

Site Status

Institut Bergonié

Bordeaux, , France

Site Status

Ligue Nationale Contre le Cancer - Comité du Finistère

Brest, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de l'Essonne

Briis-sous-Forges, , France

Site Status

Ligue Nationale Contre le Cancer - Comité du Lot

Cahors, , France

Site Status

Ligue Nationale Contre le Cancer - Comité du Puy-de-Dôme

Chamalières, , France

Site Status

Pôle Santé Léonard de Vinci

Chambray-lès-Tours, , France

Site Status

Centre Jean Perrin

Clermont-Ferrand, , France

Site Status

Ligue Nationale Contre le Cancer - Comité du Val-de-Marne

Créteil, , France

Site Status

Ligue Nationale Contre le Cancer - Comité des Landes

Dax, , France

Site Status

Ligue Nationale Contre le Cancer - Comité des Alpes de Haute-Provence

Digne-les-Bains, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de la Côte-d'Or

Dijon, , France

Site Status

Centre Georges François Leclerc

Dijon, , France

Site Status

Ligue Nationale Contre le Cancer - Comité des Vosges

Épinal, , France

Site Status

Hôpital du Bocage

Grenoble, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de la Vendée

La Roche-sur-Yon, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de Seine-Saint-Deniss

Le Bourget, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de la Haute-Vienne

Limoges, , France

Site Status

Ligue Nationale Contre le Cancer - Comité du Rhône

Lyon, , France

Site Status

Centre Léon Bérard

Lyon, , France

Site Status

Institut Paoli Calmettes

Marseille, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de Moselle

Metz, , France

Site Status

CHRU Montpellier - Hôpital Saint Eloi

Montpellier, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de l'Hérault

Montpellier, , France

Site Status

Hôpital Emile Muller

Mulhouse, , France

Site Status

CHU de Nantes - Hôpital Dieu

Nantes, , France

Site Status

Hôpital Privé du Confluent

Nantes, , France

Site Status

Centre Antoine Lacassagne

Nice, , France

Site Status

Ligue Nationale Contre le Cancer - Comité du Gard

Nîmes, , France

Site Status

ERI Territorial du Gard - Institut de Cancérologie du Gard

Nîmes, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de Paris

Paris, , France

Site Status

Institut Curie

Paris, , France

Site Status

Ligue Nationale Contre le Cancer - Comité des Pyrénées Atlantiques

Pau, , France

Site Status

Pôle Régional de Cancérologie - CHU Poitiers

Poitiers, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de l'Ardèche

Privas, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de la Marne

Reims, , France

Site Status

Centre Eugène Marquis

Rennes, , France

Site Status

Centre Henri Becquerel

Rouen, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de Seine-Maritime

Rouen, , France

Site Status

Ligue Nationale Contre le Cancer - Comité des Côtes-d'Armor

Saint-Brieuc, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de la Loire

Saint-Etienne, , France

Site Status

Institut de Cancérologie de l'Ouest - ICO - René Gauducheau

Saint-Herblain, , France

Site Status

Institut de Cancérologie de la Loire - Lucien Neuwirth

Saint-Priest-en-Jarez, , France

Site Status

Centre Paul Strauss

Strasbourg, , France

Site Status

Ligue Nationale Contre le Cancer - Comité des Hautes-Pyrénées

Tarbes, , France

Site Status

Polyclinique de l'Ormeau

Tarbes, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de l'Aube

Troyes, , France

Site Status

Institut de Cancérologie de Lorraine

Vandœuvre-lès-Nancy, , France

Site Status

Ligue Nationale Contre le Cancer - Comité des Yvelines

Versailles, , France

Site Status

Institut Gustave Roussy

Villejuif, , France

Site Status

Ligue Nationale Contre le Cancer - Comité de la martinique

Fort-de-France, , Martinique

Site Status

Centre Hospitalier Universitaire de Martinique

Fort-de-France, , Martinique

Site Status

Countries

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France Martinique

Other Identifiers

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UC-0106/1707

Identifier Type: -

Identifier Source: org_study_id