A Study of Family Caregivers' Needs, Burden of Care and Quality of Life Over the Course of a Cancer Illness

NCT ID: NCT03081312

Last Updated: 2018-04-10

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

510 participants

Study Classification

OBSERVATIONAL

Study Start Date

2017-03-01

Study Completion Date

2019-02-28

Brief Summary

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This research will determine (a) the unmet needs of family caregivers of adult cancer patients and (b) determine the impact on stress, care burden and quality of life.

A cross-sectional questionnaire methodology will be used to answer the research questions. 510 family caregivers at different stages of patients' cancer journey will be recruited. The study duration is expected to take two years. Research findings will address the knowledge gap of caregivers' needs and stress, burden and quality of life and support plans to help caregivers.

Detailed Description

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The literature suggests that caregivers have unique psychological, emotional and lifestyle needs but there is a paucity of such information of caregivers in Singapore. As this study is exploratory, no a priori hylothesis has been made. The theoretical framework guiding this research is Fulfillment Theory in which the existence and perception of needs and need fulfillment are hypothesized to be antecedents to the experience of satisfaction about care.

A cross-sectional questionnaire methodology will be used to answer the research questions. Caregivers in this study are defined as: a family member who lends physical, emotional or other support to someone at any time during the cancer journey. A power calculation was not done, instead the sample size of 510 was based on what may be practically achievable and feasible for the duration of the short-term quantitative study. Descriptive statistics will be used to characterize the distribution of socio-demographic characteristics and caregiver-related information. Regression analysis will be used to evaluate difference in overall and domain specific needs across selected characteristics. Problems identified by caregivers will be dichotomized as present or absent and chi-square tests will be used to evaluate associations with selected characteristics.

Conditions

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Family Caregivers Cancer Health Related Quality of Life

Study Design

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Observational Model Type

COHORT

Study Time Perspective

CROSS_SECTIONAL

Eligibility Criteria

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Inclusion Criteria

an adult providing care for a familyt member with cancer aged between 21 and 90 years and willing to participate in the study

Exclusion Criteria

caregiving adults who are not family members and not willing to particfipate in the study
Minimum Eligible Age

21 Years

Maximum Eligible Age

90 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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National University of Singapore

OTHER

Sponsor Role lead

Responsible Party

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Rathi Mahendran

Principal Investigator

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Rathi Mahendran, MMed(Psych)

Role: PRINCIPAL_INVESTIGATOR

Department of Psychological medicine, NUS

Locations

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Department of Psychological Medicine, NUS

Singapore, , Singapore

Site Status RECRUITING

Countries

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Singapore

Central Contacts

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Rathi Mahendran, MMed(Psych)

Role: CONTACT

67725555 ext. 23893

Facility Contacts

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Rathi Mahendran, MMed(Psych)

Role: primary

67725555 ext. 23893

Other Identifiers

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2017/00029

Identifier Type: -

Identifier Source: org_study_id

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