Study to Identify and Describe Predictive Factors for Thromboembolic Events in Patients With High-risk Polycythemia Vera

NCT ID: NCT05548062

Last Updated: 2025-09-03

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ACTIVE_NOT_RECRUITING

Total Enrollment

242 participants

Study Classification

OBSERVATIONAL

Study Start Date

2023-03-02

Study Completion Date

2027-08-31

Brief Summary

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This is a prospective observational study that will enroll patients with high-risk Polycythemia Vera (PV) with at least one Thromboembolic Event (TE) after diagnosis or up to 2 years prior to diagnosis.

This is a non-randomized study, and to ensure a sufficient number of patients in both cohorts, enrollment in each cohort will be terminated once the target of 150 patients has been reached.

Detailed Description

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All patients are already on treatment with hydroxyurea or ruxolitinib at enrollment as per clinical practice and independently of their participation in this study. In addition, the follow-up visits and the evaluation procedures required in the study protocol correspond to current clinical practice. According to local regulations related to observational studies, assessments such as blood tests are justified by the purpose and rationale of the study (i.e., the identification of possible predictive factors of TEs) and are considered current clinical practice. Data related to other procedures will be collected only if such procedures are performed as per clinical practice but are not required otherwise.

Patients in both cohorts will be followed for 3 years after enrollment and will have visits at Months 6, 12, 18, 24, 30 and 36. A time window of ± 1 month is permitted for all visits.

Conditions

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Polycythemia Vera

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Hydroxyurea

Patients being treated with hydroxyurea at enrollment and for at least 18 months prior to enrollment. Patients may switch to ruxolitinib treatment during the study in case of inadequate response or intolerance.

Hydroxyurea

Intervention Type OTHER

Prospective observational study. There is no treatment allocation. Patients prescribed with Hydroxyurea are eligible to enroll into this study.

Ruxolitinib

Patients on treatment with ruxolitinib who started treatment up to 18 months prior to enrollment.

Ruxolitinib

Intervention Type OTHER

Prospective observational study. There is no treatment allocation. Patients prescribed with Ruxolitinib are eligible to enroll into this study.

Interventions

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Hydroxyurea

Prospective observational study. There is no treatment allocation. Patients prescribed with Hydroxyurea are eligible to enroll into this study.

Intervention Type OTHER

Ruxolitinib

Prospective observational study. There is no treatment allocation. Patients prescribed with Ruxolitinib are eligible to enroll into this study.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

1. Signed informed consent must be obtained prior to participation in the study.
2. Age ≥18 years.
3. Diagnosis of PV according to WHO 2008 or WHO 2016 and high-risk stratification according to European LeukemiaNet (ELN) classification.
4. At least one TE after diagnosis or up to 2 years prior to diagnosis.
5. Patients on treatment with hydroxyurea at enrollment and for at least 18 months prior to enrollment or those on treatment with ruxolitinib who started treatment up to 18 months before enrollment.
Minimum Eligible Age

18 Years

Maximum Eligible Age

99 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Novartis Pharmaceuticals

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Novartis Pharmaceuticals

Role: STUDY_DIRECTOR

Novartis Pharmaceuticals

Locations

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Novartis Investigative Site

Alessandria, AL, Italy

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Ancona, AN, Italy

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Bari, BA, Italy

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Bologna, BO, Italy

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Como, CO, Italy

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Cosenza, CS, Italy

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Catania, CT, Italy

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Florence, FI, Italy

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Genova, GE, Italy

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Lecce, LE, Italy

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Tricase, LE, Italy

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Monza, MB, Italy

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Milan, MI, Italy

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Palermo, PA, Italy

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Palermo, PA, Italy

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Piacenza, PC, Italy

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Padua, PD, Italy

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Padua, PD, Italy

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Pisa, PI, Italy

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Parma, PR, Italy

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Reggio Calabria, RC, Italy

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Reggio Emilia, RE, Italy

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Roma, RM, Italy

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Roma, RM, Italy

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Roma, RM, Italy

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Pagani, SA, Italy

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Orbassano, TO, Italy

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Torino, TO, Italy

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Terni, TR, Italy

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Varese, VA, Italy

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Vicenza, VI, Italy

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Verona, VR, Italy

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Viterbo, VT, Italy

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Novartis Investigative Site

Napoli, , Italy

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Novartis Investigative Site

Napoli, , Italy

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Countries

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Italy

Other Identifiers

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CINC424BIT01

Identifier Type: -

Identifier Source: org_study_id

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