Perspectives of Family Carers of Older People From Turkish and Moroccan Origin in Belgium on Advance Care Planning

NCT ID: NCT05241301

Last Updated: 2023-05-11

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

25 participants

Study Classification

INTERVENTIONAL

Study Start Date

2022-03-15

Study Completion Date

2023-05-01

Brief Summary

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In this study, we will explore the perspective of family carers of older adults from Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP), more specifically concerning their knowledge about ACP, their experiences with and their points of view on ACP for their family member and their own preferences regarding how to be involved in the process of ACP for their relatives.

Detailed Description

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Whether or not someone wants to engage in ACP, is often the result of a complex interplay of meanings, events, processes and assumptions constructed by the patient and is best approached by qualitative methods. Semi-structured interviews will be used in order to explore the respondents' knowledge about and experience with ACP, also their views concerning ACP for their relatives and how do they prefer to engage in the process of ACP for their relatives will be explored.

Conditions

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Advance Care Planning Ethnic Minorities Family Caregivers

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

one to one interviews
Primary Study Purpose

OTHER

Blinding Strategy

NONE

Study Groups

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One to one interviews with family carers of older people from Turkish and Moroccan origin

one to one interviews

Group Type OTHER

one to one interviews

Intervention Type OTHER

one to one interviews to explore the perspective of family carers of older adults of Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP)

Interventions

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one to one interviews

one to one interviews to explore the perspective of family carers of older adults of Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP)

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Family carers of older adults with a Turkish or a Moroccan origin who have participated in our previous studies with NCT03930823 and NCT04335214, as identified by the older adults as the most significant family carer. Older adults in our previous studies were men and women, all 65 years and older and living in Flanders and Brussels.
* and who live in Belgium and are 18 years or older and fluent in French or Dutch language.
* and who have also given informed consent to participate in this qualitative interview study

Exclusion Criteria

* None
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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Universitair Ziekenhuis Brussel

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Hakki Demirkapu, MD

Role: PRINCIPAL_INVESTIGATOR

Vrije Universiteit Brussel

Locations

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Faculteit Geneeskunde en Farmacie

Brussels, , Belgium

Site Status

Countries

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Belgium

References

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Demirkapu H, Edally W, De Vleminck A, Van den Block L, De Maesschalck S, Devroey D. Views on advance care planning of family members of older adults with Turkish and Moroccan backgrounds: An exploratory interview study. Palliat Med. 2024 Oct;38(9):1000-1009. doi: 10.1177/02692163241261207. Epub 2024 Jun 25.

Reference Type DERIVED
PMID: 38916263 (View on PubMed)

Other Identifiers

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ACP2021M&T

Identifier Type: -

Identifier Source: org_study_id

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