SIOPEN BIOPORTAL, An International Registry Linked to a Virtual Biobank for Patients With Peripheral Neuroblastic Tumours
NCT ID: NCT05192980
Last Updated: 2025-07-22
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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RECRUITING
NA
600 participants
INTERVENTIONAL
2023-11-02
2038-11-02
Brief Summary
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This study will support data and sample management and intensify cross-borders data and sample sharing fostering translational and clinical research. The post-hoc hypothesis formulated based on the data generated in this study will be used as statistical basis for future precision medicine programs based on improved biological characterization, patient stratification and therapeutic management.
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Detailed Description
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Conditions
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Study Design
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NA
SINGLE_GROUP
OTHER
NONE
Study Groups
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Peripheral neuroblastic tumors (ganglioneuroma, ganglioneuroblastoma and neuroblastoma)
No Intervention NA
Additional blood sampling (not mandatory)
Interventions
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No Intervention NA
Additional blood sampling (not mandatory)
Other Intervention Names
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Eligibility Criteria
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Inclusion Criteria
R-1. (Adult) Patients with olfactory neuroblastoma R-2. Central nervous system (CNS) neuroblastoma (as per the WHO classification)
ALL
No
Sponsors
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Institut Curie
OTHER
Responsible Party
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Locations
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Fakultni nemocnice v Motole
Prague, , Czechia
CHU Amiens
Amiens, , France
Chu Angers
Angers, , France
Hôpital Jean Minjoz
Besançon, , France
Hôpital des enfants
Bordeaux, , France
Chru Brest
Brest, , France
CHU CAEN - Fédération de cancérologie - niveau 21
Caen, , France
CHU D'Estaing de CLERMONT FERRAND
Clermont-Ferrand, , France
DIJON Hôpital d'enfants
Dijon, , France
Chu Grenoble
Grenoble, , France
Centre Oscar Lambret
Lille, , France
Centre Léon Bérard
Lyon, , France
Hôpital d'Enfants de la Timone
Marseille, , France
Hôpital Arnaud de Villeneuve
Montpellier, , France
Chr Nantes
Nantes, , France
CHU NICE
Nice, , France
Institut Curie
Paris, , France
Hôpital Armand Trousseau
Paris, , France
Hôpital Jean Bernard
Poitiers, , France
Chu Reims
Reims, , France
Chu Hopital Sud
Rennes, , France
Hôpital Charles NICOLLE
Rouen, , France
Hôpital Nord
Saint-Etienne, , France
Hôpital Hautepierre-CHU Strasbourg
Strasbourg, , France
Hôpital des Enfants
Toulouse, , France
Hôpital Clocheville
Tours, , France
CHU NANCY- Hôpital d'Enfants
Vandœuvre-lès-Nancy, , France
Institut Gustave Roussy
Villejuif, , France
Oslo Universitetssykehus
Oslo, , Norway
Kantonsspital Aarau AG
Aarau, , Switzerland
Universitäts-Kinderspital beider Basel UKBB
Basel, , Switzerland
Ospedale San Giovanni
Bellinzona, , Switzerland
Inselspital Bern
Bern, , Switzerland
HUG Hôpitaux Universitaires Genève
Geneva, , Switzerland
CHUV, Centre hospitalier universitaire vaudois
Lausanne, , Switzerland
Kinderspital Zentralschweiz, Luzern
Lucerne, , Switzerland
Ostschweizer Kinderspital
Sankt Gallen, , Switzerland
Universitäts-Kinderspital Zürich
Zurich, , Switzerland
Countries
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Central Contacts
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Facility Contacts
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Fabienne Gumy-Pause, MD
Role: primary
Related Links
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Related Info
Other Identifiers
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IC 2020-17
Identifier Type: -
Identifier Source: org_study_id
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