Clinical Study of the Hyperviscosity Syndrome in Waldenström Macroglobulinemia

NCT ID: NCT04898647

Last Updated: 2025-05-29

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

NA

Total Enrollment

100 participants

Study Classification

INTERVENTIONAL

Study Start Date

2021-05-14

Study Completion Date

2026-08-31

Brief Summary

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Walsdenström Macroglobulinemia (WM) is defined by a bone marrow lymphoplasmacytic infiltration and the presence of a monoclonal immunoglobulin M (IgM) in blood. Clinical manifestations of the hyperviscosity syndrome (HVS) are related to the large amount of IgM in circulating blood or to some physicochemical characteristics such as the presence of a cryoglobulin property. Although HVS is one of the most frequent criteria for initiating therapy in WM, few studies focused on its description and no diagnostic criteria are available.

The present study aims to identify a diagnostic system for HVS, taking into account objective symptoms such as bleedings, fundoscopic findings and also subjective symptoms such as fatigue and comorbidities that may influence the severity of symptoms.

Detailed Description

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Conditions

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Hyperviscosity Syndrome Waldenstrom Macroglobulinemia

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

OTHER

Blinding Strategy

NONE

Study Groups

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Patients with confirmed HVS

presence of unexplained elsewhere fundoscopic abnormalities AND either IgM concentration above 30 g/L (densitometry) or cryoglobulin activity

Group Type EXPERIMENTAL

fundoscopic picture

Intervention Type OTHER

A central review of numerised fundoscopic picture will be performed.

blood sample

Intervention Type BIOLOGICAL

Two 10 ml blood vials will be sampled in addition to standard blood sampling for getting 6 to 7 200 μL aliquot.

One 5 ml EDTA vial for GP1bα expression study, only if this sample can be sent to hemostasis laboratory within the 4 hours after sampling

bone marrow sample

Intervention Type PROCEDURE

Five to 10 ml bone marrow sample will be collected in addition to standard bone marrow sampling for getting molecular characteristics of WM

Patients with confirmed absence of HVS

Group Type ACTIVE_COMPARATOR

fundoscopic picture

Intervention Type OTHER

A central review of numerised fundoscopic picture will be performed.

blood sample

Intervention Type BIOLOGICAL

Two 10 ml blood vials will be sampled in addition to standard blood sampling for getting 6 to 7 200 μL aliquot.

One 5 ml EDTA vial for GP1bα expression study, only if this sample can be sent to hemostasis laboratory within the 4 hours after sampling

bone marrow sample

Intervention Type PROCEDURE

Five to 10 ml bone marrow sample will be collected in addition to standard bone marrow sampling for getting molecular characteristics of WM

Remaining patients

Group Type EXPERIMENTAL

fundoscopic picture

Intervention Type OTHER

A central review of numerised fundoscopic picture will be performed.

blood sample

Intervention Type BIOLOGICAL

Two 10 ml blood vials will be sampled in addition to standard blood sampling for getting 6 to 7 200 μL aliquot.

One 5 ml EDTA vial for GP1bα expression study, only if this sample can be sent to hemostasis laboratory within the 4 hours after sampling

bone marrow sample

Intervention Type PROCEDURE

Five to 10 ml bone marrow sample will be collected in addition to standard bone marrow sampling for getting molecular characteristics of WM

Interventions

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fundoscopic picture

A central review of numerised fundoscopic picture will be performed.

Intervention Type OTHER

blood sample

Two 10 ml blood vials will be sampled in addition to standard blood sampling for getting 6 to 7 200 μL aliquot.

One 5 ml EDTA vial for GP1bα expression study, only if this sample can be sent to hemostasis laboratory within the 4 hours after sampling

Intervention Type BIOLOGICAL

bone marrow sample

Five to 10 ml bone marrow sample will be collected in addition to standard bone marrow sampling for getting molecular characteristics of WM

Intervention Type PROCEDURE

Eligibility Criteria

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Inclusion Criteria

* Patient with WM
* Patients that may require a first-line or subsequent-line therapy
* patients who will require treatment initiation
* patients with serum monoclonal component concentration greater than 15 g/L and who will underwent hyperviscosity assessment, even if hyperviscosity is not found and in the absence of other treatment criteria, no treatment is finally initiated.
* Patients agreeing to give informed consent.

Exclusion Criteria

* Patients with another chronic B-cell malignancy
* patients with lymphoplasmacytic proliferations
* patients with marginal zone lymphoma.
* patients with WM and histologic transformation
* Absence of informed consent.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Centre Hospitalier Saint Vincent

UNKNOWN

Sponsor Role collaborator

Centre Henri Becquerel

OTHER

Sponsor Role collaborator

University Hospital, Caen

OTHER

Sponsor Role collaborator

University Hospital, Lille

OTHER

Sponsor Role collaborator

Centre Hospitalier de Lens

OTHER

Sponsor Role collaborator

Centre Hospitalier Universitaire, Amiens

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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CHU Amiens

Amiens, , France

Site Status RECRUITING

Countries

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France

Central Contacts

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Magalie JORIS, MD

Role: CONTACT

03 22 45 54 19

Facility Contacts

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Magalie JORIS, MD

Role: primary

03.22.45.54.19

Other Identifiers

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PI2020_843_0109

Identifier Type: -

Identifier Source: org_study_id

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