Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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UNKNOWN
28 participants
OBSERVATIONAL
2020-09-25
2023-12-01
Brief Summary
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Detailed Description
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1. Learn how people with SCI attain and maintain optimal quality of life as they age.
2. Understand how people with SCI develop resilience as they grow older.
3. Understand how individual quality of life is related to the degree and mechanism of resilience among people with SCI.
4. Learn which resources and practices have been most helpful and useful to people with SCI as they age with their disability.
5. Assess personal, behavioral, and environmental factors that contribute to resilience and quality of life among people aging with SCI.
6. Refine and confirm a holistic model for the relationships among the concepts of resilience, quality of life, and person-centered factors (resources, behaviors).
Through in-depth interviews and detailed surveys, we will explore how people with SCI attain and maintain optimal quality of life as they age, and how their quality of life relates to resiliency as they traverse the path of aging with SCI. We will explore with participants the resources and practices that have been most helpful and useful to them as they age with their disability.
Conditions
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Study Design
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COHORT
RETROSPECTIVE
Study Groups
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1-5 Years post
Persons with Spinal Cord Injury occurring between 1-5 years prior
Structured Interview
Structured interview with research staff about your experience living with spinal cord injury
5-15 Years post
Persons with Spinal Cord Injury occurring between 5-15 years prior
Structured Interview
Structured interview with research staff about your experience living with spinal cord injury
>15 Years post
Persons with Spinal Cord Injury occurring at least 15 years prior
Structured Interview
Structured interview with research staff about your experience living with spinal cord injury
Interventions
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Structured Interview
Structured interview with research staff about your experience living with spinal cord injury
Eligibility Criteria
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Inclusion Criteria
* History of Traumatic Spinal Cord Injury at least 1 year prior
Exclusion Criteria
18 Years
80 Years
ALL
No
Sponsors
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Kiwanis Neurological Research Foundation
UNKNOWN
Shirley Ryan AbilityLab
OTHER
Responsible Party
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Elliot Roth
Co-Medical Director, Brain Innovation Center
Principal Investigators
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Elliot Roth, MD
Role: PRINCIPAL_INVESTIGATOR
Shirley Ryan AbilityLab
Locations
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Shirley Ryan AbilityLab
Chicago, Illinois, United States
Countries
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References
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Roth EJ, Lovell L, Barry A. Perspectives on factors influencing quality of life in persons with long-term spinal cord injury: a qualitative study. Spinal Cord. 2024 Jun;62(6):343-347. doi: 10.1038/s41393-024-00991-w. Epub 2024 Apr 22.
Other Identifiers
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STU00213014
Identifier Type: -
Identifier Source: org_study_id
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