A Study to Understand the Genetics and Clinical Course of Focal Segmental Glomerulosclerosis (FSGS), Treatment-Resistant Minimal Change Disease (TR-MCD), and Diabetic Nephropathy (DN)

NCT ID: NCT04235621

Last Updated: 2021-07-20

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

TERMINATED

Total Enrollment

20 participants

Study Classification

OBSERVATIONAL

Study Start Date

2019-12-20

Study Completion Date

2020-05-27

Brief Summary

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This is a study with 2 parts. Part 1 comprises a visit to collect biological samples necessary for the molecular characterization of chronic kidney disease. Part 2 comprises an observational period of 5 visits over a period up to 8 weeks. During Part 2, baseline tests will be conducted, and urine will be collected approximately every 2 weeks for 8 weeks. Patients may participate in Part 1, Part 2, or both, and will be followed for up to 1 year consisting of data collection from the patient's medical records and home collection of urine samples every 4 months.

Detailed Description

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Conditions

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Glomerulosclerosis, Focal Segmental Minimal Change Disease Diabetic Nephropathies

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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FSGS/TR-MCD

Patients with FSGS/TR-MCD

FSGS/TR-MCD

Intervention Type OTHER

This is a non-interventional study

Diabetic Nephropathy (DN)

Patients with DN

Diabetic Nephropathy (DN)

Intervention Type OTHER

This is a non-interventional study

Interventions

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FSGS/TR-MCD

This is a non-interventional study

Intervention Type OTHER

Diabetic Nephropathy (DN)

This is a non-interventional study

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

For FSGS/TR-MCD patients :

1. Competent and willing to provide informed consent and adhere to all study assessments and restrictions.
2. Male or female ≥ 18 years of age with FSGS or TR-MCD at the time of providing written informed consent.
3. Diagnosis of FSGS or TR-MCD, based on either biopsy or genetic testing.
4. Urinary protein to creatinine ratio (UPCR) ≥ 1.0 g/g.
5. Estimated glomerular filtration rate (eGFR) ≥ 45 mL/min/1.73 m2.

For DN patients:

1. Competent and willing to provide informed consent and adhere to all study assessments and restrictions.
2. Male or female ≥ 18 years of age with DN at the time of providing written informed consent.
3. Diagnosis of type 2 diabetes
4. Urinary albumin to creatinine ratio (UACR) ≥ 150 mg/g.
5. Estimated glomerular filtration rate (eGFR) ≥ 45 mL/min/1.73 m2.

Exclusion Criteria

For FSGS/TR-MCD patients:

1. Evidence of another kidney disease or kidney disease secondary to an infectious process.
2. History of human immunodeficiency virus (HIV), hepatitis B, or hepatitis C. Patients whose results are compatible with prior immunization or treatment may be included.
3. Body mass index (BMI) \> 42 kg/m2.
4. Significant history or evidence of clinically significant disorder, condition, current illness, or disease that, in the opinion of the Investigator, would pose a risk to patient safety or interfere with the study evaluation, procedures, or completion (eg, severe cardiac disease, cardiac conduction defect, or severe or chronic hepatobiliary disease).
5. History of malignancy not in remission within the last 5 years other than adequately treated basal cell or squamous cell skin cancer or cervical carcinoma in situ.
6. History of any organ or bone marrow transplant, including kidney grafts.
7. History of alcoholism or drug/chemical abuse within 12 months.
8. Preplanned surgery or procedures that would interfere with the conduct of the study.

For DN patients:

1. Evidence of another kidney disease or kidney disease secondary to an infectious process.
2. History of HIV, hepatitis B, or hepatitis C. Patients whose results are compatible with prior immunization or treatment may be included.
3. BMI \> 42 kg/m2.
4. Significant history or evidence of clinically significant disorder, condition, current illness, or disease that, in the opinion of the Investigator, would pose a risk to patient safety or interfere with the study evaluation, procedures, or completion (eg, severe cardiac disease, cardiac conduction defect, or severe or chronic hepatobiliary disease).
5. History of malignancy not in remission within the last 5 years other than adequately treated basal cell or squamous cell skin cancer or cervical carcinoma in situ.
6. History of any organ or bone marrow transplant, including kidney grafts.
7. History of alcoholism or drug/chemical abuse within 12 months.
8. Preplanned surgery or procedures that would interfere with the conduct of the study.
9. Renal disease that requires immunosuppressive therapy (currently, or in the past).
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Goldfinch Bio, Inc.

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Aventiv Research - Phoenix

Mesa, Arizona, United States

Site Status

Glendale Adventist Medical Center

Glendale, California, United States

Site Status

DaVita Mojave Sage Dialysis

Victorville, California, United States

Site Status

Colorado Kidney Care

Denver, Colorado, United States

Site Status

Renal and Transplant Associates of New England, PC

Springfield, Massachusetts, United States

Site Status

St. Clair Nephrology

Roseville, Michigan, United States

Site Status

DaVita Clinical Research

Minneapolis, Minnesota, United States

Site Status

Clinical Research Consultants

Kansas City, Missouri, United States

Site Status

DaVita Pelican Point Dialysis

Las Vegas, Nevada, United States

Site Status

High Desert Nephrology

Gallup, New Mexico, United States

Site Status

Akron Nephrology Associates, Inc.

Akron, Ohio, United States

Site Status

Southeast Renal Research Institute

Chattanooga, Tennessee, United States

Site Status

Arlington Nephrology, PC

Arlington, Texas, United States

Site Status

North Texas Kidney Disease Association

Lewisville, Texas, United States

Site Status

South Texas Renal Care Group (Downtown)

San Antonio, Texas, United States

Site Status

San Antonio Kidney Disease Center Physicians Group (Wurzbach Road)

San Antonio, Texas, United States

Site Status

South Texas Renal Care Group (Westover Hills)

San Antonio, Texas, United States

Site Status

San Antonio Kidney Disease Center Physicians Group (Carnoustie Drive)

San Antonio, Texas, United States

Site Status

Countries

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United States

Other Identifiers

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GFB-887-501

Identifier Type: -

Identifier Source: org_study_id

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