Clinical Outcome Assessment of Parkinson's Disease Patients Treated With XADAGO (Safinamide)

NCT ID: NCT03944785

Last Updated: 2023-06-07

Study Results

Results available

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Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

164 participants

Study Classification

OBSERVATIONAL

Study Start Date

2017-11-30

Study Completion Date

2020-01-10

Brief Summary

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This is a Phase IV, prospective, observational, post-marketing study designed to obtain additional data on the effect of XADAGO on motor and non-motor symptoms in Parkinson's Disease patients newly prescribed XADAGO.

Detailed Description

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This Phase IV, multicenter, prospective, observational study to evaluate clinician-reported outcomes and patient-reported outcomes related to motor and non-motor symptoms, health status, quality of life and treatment satisfaction in PD patients who have been newly prescribed XADAGO according to Package Insert indication.

This study also will gather "real world" data from a PD population in the US regarding their overall experience and degree of satisfaction with the use of XADAGO as an add-on treatment to their L-dopa regimen. Treatment experience will be captured using patient self-rating assessments as well as clinician ratings on assessments.

Conditions

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Idiopathic Parkinson Disease

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Parkinson's Disease Patients

PD patients who have been newly prescribed safinamide (XADAGO) for the treatment of OFF episodes as described in the XADAGO Package Insert

XADAGO (safinamide)

Intervention Type DRUG

XADAGO (safinamide) is a monoamine oxidase type B (MAO-B) inhibitor indicated as adjunctive treatment to levodopa/carbidopa in patients with Parkinson's disease experiencing off episodes.

Interventions

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XADAGO (safinamide)

XADAGO (safinamide) is a monoamine oxidase type B (MAO-B) inhibitor indicated as adjunctive treatment to levodopa/carbidopa in patients with Parkinson's disease experiencing off episodes.

Intervention Type DRUG

Other Intervention Names

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XADAGO safinamide

Eligibility Criteria

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Inclusion Criteria

1. Patient (and Care Partner, if required per Inclusion Criterion 6) is able to understand and provide signed informed consent and HIPAA authorization in English.
2. Patient with diagnosis of idiopathic PD (all stages).
3. Independent of the study, clinician's and patient's choice of treatment is XADAGO in accordance with the Package Insert indication.
4. Patient is willing and able to participate in the study and complete study-related assessments for 2 months and, patients can continue for an optional 4-month study extension.
5. Patient has access to an electronic device for the interim completion of PROs.
6. Patient has an available Care Partner who is able and willing to assist with clinic attendance and completion of study assessments (e.g., PROs, health outcomes, etc.), if in the PI's opinion, assistance is needed to comply with all study visits and procedures.

Exclusion Criteria

1. Any of the warnings, precautions, or contraindications listed in the XADAGO Package Insert that in the opinion of the PI would prevent appropriate treatment with XADAGO or impair study participation (e.g., pregnancy, lactation, severe hepatic impairment, etc.).
2. Participation in any other clinical trial of an investigational drug or device within 4 weeks prior to the Baseline Visit or at any time during the study.
3. Patient is currently receiving chemotherapy or radiation for any form of cancer (if history of cancer, must be in clinical remission at study entry) or currently receiving immunotherapy.
4. Patients with conditions that are likely to prevent them from accurately and reliably completing study assessments, including evidence of moderate or severe dementia as determined by the clinician (not to include mild cognitive impairment \[MCI\]); major psychiatric illness (specifically diagnosis of schizophrenia, bipolar disorder or a history of attempted suicide); and/or severe and progressive medical illness (including terminal cancer, end-stage renal disease +/- undergoing dialysis).
5. Severe or unpredictable dyskinesia at the time of the Baseline Visit.
6. Previous participation in this study; a patient may not re-enroll after prior discontinuation or completion
Minimum Eligible Age

30 Years

Maximum Eligible Age

80 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Supernus Pharmaceuticals, Inc.

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Najeebah Abdul-Musawir, MD,MBA

Role: STUDY_DIRECTOR

Supernus Pharmaceuticals, Inc.

Locations

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Alabama Neurology Associates

Homewood, Alabama, United States

Site Status

Movement Disorders Neurology, Inc.

Bakersfield, California, United States

Site Status

B.E.S.T. Center of Orange County

Laguna Hills, California, United States

Site Status

Valley Parkinson Clinic

Los Gatos, California, United States

Site Status

UC Davis Medical Center

Sacramento, California, United States

Site Status

Hartford Healthcare

Vernon, Connecticut, United States

Site Status

Georgetown University Hospital

Washington D.C., District of Columbia, United States

Site Status

Parkinson's Disease and Movement Disorders Center of Boca Raton

Boca Raton, Florida, United States

Site Status

Neuron Research

Naples, Florida, United States

Site Status

Parkinson's Disease Treatment Center of SW Florida

Port Charlotte, Florida, United States

Site Status

Sarasota Memorial Hospital Clinical Research Cener

Sarasota, Florida, United States

Site Status

Central DuPage Hospital

Winfield, Illinois, United States

Site Status

University of Kansas Medical Center

Kansas City, Kansas, United States

Site Status

Baptist Health System

Richmond, Kentucky, United States

Site Status

Southeast Neuroscience Center, LLC

Gray, Louisiana, United States

Site Status

Lester and Cox Medical Center

Springfield, Missouri, United States

Site Status

Neurological Associates of Long Island, PC

Lake Success, New York, United States

Site Status

NYU Winthrop Hospital

Mineola, New York, United States

Site Status

FryeCare Neurology

Hickory, North Carolina, United States

Site Status

Dayton Center for Neurological Disorders

Centerville, Ohio, United States

Site Status

The Movement Disorder Clinic of Oklahoma

Tulsa, Oklahoma, United States

Site Status

Neurology and Stroke Associates

Lititz, Pennsylvania, United States

Site Status

Prisma Health

Greenville, South Carolina, United States

Site Status

Covenant Medical Group

Lubbock, Texas, United States

Site Status

Texas Institute for Neurological Disorders

Sherman, Texas, United States

Site Status

Houston Methodist - Sugar Land

Sugar Land, Texas, United States

Site Status

Baylor Scott and White Health

Temple, Texas, United States

Site Status

Inova Medical Group- Neurology I

Alexandria, Virginia, United States

Site Status

Meridian Clinical Research, LLC

Norfolk, Virginia, United States

Site Status

Puget Sound Neurology

Tacoma, Washington, United States

Site Status

Countries

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United States

Provided Documents

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Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan

View Document

Other Identifiers

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USWM-SA1-4001

Identifier Type: -

Identifier Source: org_study_id

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