Regional Registry-based Biobank Development and Pharmacogenetic Analysis in Rheumatoid Arthritis

NCT ID: NCT03555240

Last Updated: 2019-11-12

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

600 participants

Study Classification

OBSERVATIONAL

Study Start Date

2014-10-27

Study Completion Date

2018-09-28

Brief Summary

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Aim of this project is the building-up of an integrated model of multidisciplinary research tools to support large-scale and high-quality disease-based studies.

Detailed Description

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Biologics have revolutionized rheumatoid arthritis (RA) management, with a great impact on patient that justifies treatment with these high-cost drugs. Nevertheless, timing and proper therapeutic decision making remain the main challenge in clinical practice.

Pharmacogenetics approach might open promising perspectives, increasing our understanding on genetic-related drug efficacy. Nevertheless, to ensure feasibility and reliability of translational applications of this strategy in clinical practice, large population-based research studies represent a crucial key step.

Objectives

Major aim of this project is the building-up of an integrated model of multidisciplinary research tools to support large-scale and high-quality disease-based studies. The main targets of this proposal will be:

* to develop a disease-based biobank, integrated with already established Emilia-Romagna regional RA Registry, providing a large-scale prospective collection and storing of multiple biological samples
* to perform a pharmacogenetic study analyzing a panel of gene variants potentially influencing the response to Tumor Necrosis Factor (TNF) blockers. Methods
* Biobank development. A step-wise plan will be considered for: designing biobank governance frame-work, defining Standard Operating Procedures, implementing information system resources. All these procedures will be applied for collecting, processing and storing biological samples of patients included in regional RA registry.
* Pharmacogenetic study. A panel of candidate gene variants will be studied in genomic DNA from 300 patients enrolled in the regional RA registry. The association between genotypes and response to biological drugs will be assessed by data-mining approach, and a predictive model will be defined. Expected Results This proposal will create a disease-based biobank, tightly integrated with the already established Emilia-Romagna regional RA Registry, and pave the way towards personalized therapy applications in Rheumatology.

Conditions

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Rheumatoid Arthritis

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Patient with Rheumatoid Arthritis

Patient with Rheumatoid Arthritis living in the Emilia Romagna Italian region whom samples will be collected for the Biobank creation and Pharmacogenetic analysis

Biobank creation and Pharmacogenetic analysis

Intervention Type OTHER

Collection of biological samples (blood, serum, plasma) form patient enrolled in the Emilia Romagna rheumatoid arthritis registry and genotyping genomic DNA samples, and assessing the association between genotypes and response to biological drugs, using multivariate and data-mining approaches that includes also clinical and demographic parameters.

Interventions

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Biobank creation and Pharmacogenetic analysis

Collection of biological samples (blood, serum, plasma) form patient enrolled in the Emilia Romagna rheumatoid arthritis registry and genotyping genomic DNA samples, and assessing the association between genotypes and response to biological drugs, using multivariate and data-mining approaches that includes also clinical and demographic parameters.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

1. Diagnosis of Arthritis Rheumatoid according American College of Rheumatology (ACR)1987 or according ACR/European League Against Rheumatism (EULAR) 2010 criteria
2. Patients with new diagnosis or patients already diagnosed with active disease \[with Disease Activity Score (DAS) 28 \> o = 4,2\] or patients switching therapy
3. Male and female patients of minimum 18 years old
4. Provision of informed consent

Exclusion Criteria

1\) Patients living outside Emilia Romagna region
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Regione Emilia Romagna - Italy within PRU-Liberati project

UNKNOWN

Sponsor Role collaborator

Istituto Ortopedico Rizzoli

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Elisa Assirelli, BSc

Role: PRINCIPAL_INVESTIGATOR

Rizzoli Orthopedic Institute

Locations

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Rheumatology Unit IRCCS Orthopedic Rizzoli Institute

Bologna, BO, Italy

Site Status

Rheumatology Unit, Internal Medicine Department of Internal Medicine and Nephrology diseases and Aging

Bologna, BO, Italy

Site Status

Rheumatology Unit, Department of Internal Medicine Buflini Hospital

Cesena, FC, Italy

Site Status

Medical Genetics Unit, Dept. of Biomedical and Specialty Surgery

Ferrara, FE, Italy

Site Status

Rheumatology Unit S.Anna University Hospital

Ferrara, FE, Italy

Site Status

Rheumatology Unit, Internal Medicine Department Morgagni Hospital

Forlì, Fo, Italy

Site Status

Unit of Internal Medicine, Medical Internistic Department Ospedale Santa maria delle croci

Ravenna, RA, Italy

Site Status

Division of Rheumatology Azienda Ospedaliera-IRCC S, Reggio Emilia

Reggio Emilia, RE, Italy

Site Status

Department of Internal Medicine Infermis' Hospital

Rimini, RN, Italy

Site Status

Laboratory of Immunorheumatology and Tissue Regeneration IRCC Rizzoli Orthopedic Institute

Bologna, , Italy

Site Status

Countries

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Italy

References

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Boonen A, Severens JL. The burden of illness of rheumatoid arthritis. Clin Rheumatol. 2011 Mar;30 Suppl 1:S3-8. doi: 10.1007/s10067-010-1634-9. Epub 2011 Feb 26.

Reference Type BACKGROUND
PMID: 21359507 (View on PubMed)

Hamilton SR, Chatrian GE, Mills RP, Kalina RE, Bird TD. Cone dysfunction in a subgroup of patients with autosomal dominant cerebellar ataxia. Arch Ophthalmol. 1990 Apr;108(4):551-6. doi: 10.1001/archopht.1990.01070060099057.

Reference Type BACKGROUND
PMID: 2322158 (View on PubMed)

Scott DL. Biologics-based therapy for the treatment of rheumatoid arthritis. Clin Pharmacol Ther. 2012 Jan;91(1):30-43. doi: 10.1038/clpt.2011.278. Epub 2011 Dec 14.

Reference Type BACKGROUND
PMID: 22166850 (View on PubMed)

Ruderman EM. Overview of safety of non-biologic and biologic DMARDs. Rheumatology (Oxford). 2012 Dec;51 Suppl 6:vi37-43. doi: 10.1093/rheumatology/kes283.

Reference Type BACKGROUND
PMID: 23221586 (View on PubMed)

Prajapati R, Plant D, Barton A. Genetic and genomic predictors of anti-TNF response. Pharmacogenomics. 2011 Nov;12(11):1571-85. doi: 10.2217/pgs.11.114.

Reference Type BACKGROUND
PMID: 22044414 (View on PubMed)

Provided Documents

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Document Type: Study Protocol

View Document

Other Identifiers

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PRUA1GR-2013-00000203

Identifier Type: -

Identifier Source: org_study_id

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