Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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RECRUITING
1200 participants
OBSERVATIONAL
2018-02-15
2027-06-30
Brief Summary
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Detailed Description
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Conditions
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Study Design
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COHORT
PROSPECTIVE
Study Groups
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Affected
Affected with ALS or a related disorder.
No interventions assigned to this group
Eligibility Criteria
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Inclusion Criteria
* Receiving care at a clinical center that uses Epic as its EHR.
* Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
Exclusion Criteria
18 Years
ALL
No
Sponsors
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Muscular Dystrophy Association
OTHER
National Institute of Neurological Disorders and Stroke (NINDS)
NIH
National Center for Advancing Translational Sciences (NCATS)
NIH
National Institutes of Health (NIH)
NIH
University of Miami
OTHER
Responsible Party
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Michael Benatar
Chief, Neuromuscular Division
Principal Investigators
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Michael Benatar, MBChB, MS, DPhil
Role: PRINCIPAL_INVESTIGATOR
University of Miami
Locations
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University of California, Irvine
Irvine, California, United States
Stanford University
Palo Alto, California, United States
California Pacific Medical Center
San Francisco, California, United States
University of Miami
Miami, Florida, United States
University of Kansas Medical Center
Kansas City, Kansas, United States
Hennepin County Medical Center
Minneapolis, Minnesota, United States
Columbia University
New York, New York, United States
Duke University
Durham, North Carolina, United States
Wake Forest University
Winston-Salem, North Carolina, United States
Providence Health & Services
Portland, Oregon, United States
University of Texas San Antonio Health Science Center
San Antonio, Texas, United States
Countries
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Central Contacts
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Facility Contacts
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Other Identifiers
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20170785
Identifier Type: -
Identifier Source: org_study_id
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