Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org

NCT ID: NCT00302198

Last Updated: 2010-03-02

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

15000 participants

Study Classification

OBSERVATIONAL

Study Start Date

2006-01-31

Study Completion Date

2010-02-28

Brief Summary

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The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.

Detailed Description

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Any person who has been diagnosed with ALS by a physician can enroll into this registry.

The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.

Conditions

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Amyotrophic Lateral Sclerosis

Study Design

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Study Time Perspective

PROSPECTIVE

Interventions

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ALS Registry

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

Inclusion Criteria:

* There are no inclusion and exclusion criteria beyond the fact that a person needs to have ALS in order to enroll.
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Muscular Dystrophy Association

OTHER

Sponsor Role collaborator

Forbes Norris MDA/ALS Research Center

OTHER

Sponsor Role lead

Principal Investigators

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Robert G Miller, MD

Role: PRINCIPAL_INVESTIGATOR

California Pacific Medical Center

Locations

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Forbes Norris MDA/ALS Center

San Francisco, California, United States

Site Status

Countries

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United States

Other Identifiers

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23.112

Identifier Type: -

Identifier Source: org_study_id

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