MedDataX Logo

Swiss Primary Sclerosing Cholangitis Cohort Study

NCT ID: NCT03146936

Last Updated: 2025-08-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

Get a concise snapshot of the trial, including recruitment status, study phase, enrollment targets, and key timeline milestones.

Recruitment Status

RECRUITING

Total Enrollment

120 participants

Study Classification

OBSERVATIONAL

Study Start Date

2017-02-28

Study Completion Date

2030-12-31

Brief Summary

Review the sponsor-provided synopsis that highlights what the study is about and why it is being conducted.

Research project in which biological material is sampled and health-related personal data is further used and collected.

Coded data are used.

Related Clinical Trials

Explore similar clinical trials based on study characteristics and research focus.

Swiss Primary Biliary Cholangitis Cohort Study

NCT03146910

PBC Primary Biliary Cholangitis
RECRUITING

Soins intégrés BPCO (Broncho-pneumopathie Chronique Obstructive) en Valais - Mieux Vivre Avec ma BPCO (COPD Integrated Care Program Valais - Living Well With COPD)

NCT02001922

Chronic Obstructive Pulmonary Disease (COPD)
COMPLETED NA

Phenotypes and Vascular Damage in Chronic Obstructive Pulmonary Disease (COPD)

NCT01527773

Chronic Obstructive Pulmonary Disease
COMPLETED

Is COPD a Risk Factor for Cardiovascular Disease?

NCT02162095

Chronic Obstructive Pulmonary Disease
COMPLETED

Severe Chronic Obstructive Pulmonary Disease Inhalation Profiles Comparison

NCT02076269

Pulmonary Disease, Chronic Obstructive
COMPLETED PHASE1

Detailed Description

Dive into the extended narrative that explains the scientific background, objectives, and procedures in greater depth.

The investigators wish to collect high quality prospective data on a rare disease in order to elucidate epidemiology, natural history, response to treatment and outcome. In addition, a biobank allows addressing specific scientific issues on a variety of open questions. The cohort will provide a platform for carrying out scientific research projects on PSC. In addition, the cohort will allow collaborations with reference networks on PSC abroad

Conditions

See the medical conditions and disease areas that this research is targeting or investigating.

Cholangitis, Sclerosing PSC Primary Sclerosing Cholangitis (PSC)

Study Design

Understand how the trial is structured, including allocation methods, masking strategies, primary purpose, and other design elements.

Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

Check the participation requirements, including inclusion and exclusion rules, age limits, and whether healthy volunteers are accepted.

Inclusion Criteria

* Patients diagnosed with PSC according to established criteria (European Association for the Study of the Liver. EASL Clinical Practice Guidelines: management of cholestatic liver diseases) of any age. Patients not fulfilling such criteria but still diagnosed with PSC in a hepatology referral centre can be included
* patients living in Switzerland

Exclusion Criteria

* N/A
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

Meet the organizations funding or collaborating on the study and learn about their roles.

Fondazione Epatocentro Ticino

OTHER

Sponsor Role lead

Responsible Party

Identify the individual or organization who holds primary responsibility for the study information submitted to regulators.

Responsibility Role SPONSOR

Locations

Explore where the study is taking place and check the recruitment status at each participating site.

Fondazione Epatocentro Ticino

Lugano, Canton Ticino, Switzerland

Site Status RECRUITING

Gastroenterologie und Hepatologie Clarunis - Universitäres Bauchzentrum Universitätsspital Basel

Basel, , Switzerland

Site Status RECRUITING

Universitäts-Kinderspital beider Basel UKBB, Gastroenterologie&Ernährung

Basel, , Switzerland

Site Status RECRUITING

Inselspital

Bern, , Switzerland

Site Status RECRUITING

Kinderklinik, INSELSpital, Universität Bern, Pädiatrische Gastroenterologie, Hepatologie und Ernährung

Bern, , Switzerland

Site Status RECRUITING

Spital Bülach

Bülach, , Switzerland

Site Status RECRUITING

Kantonsspital Graubünden

Chur, , Switzerland

Site Status RECRUITING

Hôpitaux Universitaires de Genève, Centre Suisse des Maladies du foie de l'Enfant- Département de l'Enfant et de l'Adolescent

Geneva, , Switzerland

Site Status RECRUITING

Hôpitaux Universitaires de Genève, Service de Gastroentérologie & Hépatologie, Département des Spécialités

Geneva, , Switzerland

Site Status RECRUITING

CHUV: Centre hospitalier universitaire vaudois

Lausanne, , Switzerland

Site Status RECRUITING

CHUV Département femme-mère-enfant

Lausanne, , Switzerland

Site Status RECRUITING

Kantonsspital Baselland

Liestal, , Switzerland

Site Status RECRUITING

Kinderspital Luzern LUKS, Pädiatrische Gastroenterologie

Lucerne, , Switzerland

Site Status RECRUITING

Luzerner Kantonsspital

Lucerne, , Switzerland

Site Status RECRUITING

EOC Ospedale Regionale di Lugano - Italiano

Lugano, , Switzerland

Site Status RECRUITING

Ostschweizer Kinderspital

Sankt Gallen, , Switzerland

Site Status RECRUITING

Kantonsspital St.Gallen

Sankt Gallen, , Switzerland

Site Status RECRUITING

Kantonsspital Winterthur

Winterthur, , Switzerland

Site Status RECRUITING

Pädiatrische Gastroenterologie Departement Kinder- und Jugendmedizin Kantonsspital Winterthur

Winterthur, , Switzerland

Site Status RECRUITING

Universitäts-Kinderspital Zürich - Eleonorenstiftung

Zurich, , Switzerland

Site Status RECRUITING

Universitätsspital Zürich

Zurich, , Switzerland

Site Status RECRUITING

Countries

Review the countries where the study has at least one active or historical site.

Switzerland

Central Contacts

Reach out to these primary contacts for questions about participation or study logistics.

Andreas Cerny, Prof. Dr. med

Role: CONTACT

[email protected]
+41 91 910 6570

Facility Contacts

Find local site contact details for specific facilities participating in the trial.

Andreas Cerny, Prof. Dr. med

Role: primary

[email protected]
+41 91 910 6570

Christine Bernsmeier, PD Dr. med. Dr. phil.

Role: primary

[email protected]
+41 61 777 7400

Raoul Furlano, PD MD

Role: primary

[email protected]
+4161 704 12 13

Maria Gabriela Delgado, MD

Role: primary

[email protected]
+4131 632 09 00

Christiane Sokollik, MD

Role: primary

[email protected]
+4131 632 50 93

Stephan Böhm, Prof. Dr. med

Role: primary

[email protected]
+41 44 863 24 30

Simon Brunner, Dr. med.

Role: primary

[email protected]
+41 81 256 63 07

Valérie McLin, Prof.

Role: primary

[email protected]
+4122 382 45 72

Giulia Magini, Dr. med.

Role: primary

[email protected]
+41 22 372 93 40

Montserrat Fraga Christinet

Role: primary

[email protected]
+41 21 314 04 33

Andreas Nydegger, MD

Role: primary

[email protected]
+41 21 314 11 11

Magdalena Filipowicz-Sinnreich, MD

Role: primary

[email protected]
+41 61 925 23 60

Franziska Righini-Grunder, Dr. med.

Role: primary

[email protected]
+4141 205 32 09

Andrea De Gottardi, Prof. Dr. med

Role: primary

[email protected]
+41 41 205 21 31

Benedetta Terziroli Beretta-Piccoli, MD

Role: primary

[email protected]
+41 91 811 7637

Pascal Müller, MD

Role: primary

[email protected]
+4171 243 13 44

David Semela, MD

Role: primary

[email protected]
+4171 4941216

Björn Becker, MD

Role: primary

[email protected]
+41 052 266 21 21

Klaas Heyland, Dr. med.

Role: primary

[email protected]
+41 522663452

Carsten Posovszky, Prof. Dr. med

Role: primary

[email protected]
+41 44 249 60 41

Andreas Kremer, Prof. Dr. med

Role: primary

[email protected]
+41 44 255 85 48

Other Identifiers

Review additional registry numbers or institutional identifiers associated with this trial.

SASL40 - Swiss PSC Cohort

Identifier Type: -

Identifier Source: org_study_id

More Related Trials

Additional clinical trials that may be relevant based on similarity analysis.

Breath Analysis in Chronic Obstructive Lung Disease (COPD)
NCT02186639 COMPLETED
Systemic Consequences and Comorbidities in Mild/Moderate Chronic Obstructive Pulmonary Disease (COPD), Time for Action!
NCT01314807 UNKNOWN
Assessment of Comorbidities in Chronic Obstructive Pulmonary Disease (COPD) in European Symptomatic Subjects From Primary Care
NCT01516528 COMPLETED
A Cross Sectional Disease/Condition Focused Observational Study on Chronic Obstructive Pulmonary Disease (COPD)
NCT02100332 COMPLETED
European Non-interventional Study in Chronic Obstructive Pulmonary Disease (COPD) Patients
NCT00722267 COMPLETED
Basics in Acute Shortness of Breath EvaLuation (BASEL V) Study
NCT01831115 ACTIVE_NOT_RECRUITING
The Significance of Circulating Microvesicles in Pulmonary Hypertension Due to Chronic Obstructive Pulmonary Disease
NCT05250128 UNKNOWN
Bronchial Inflammation in Patients With Bronchiolithis Obliterans
NCT01633385 COMPLETED
Interstitial Lung Disease Trajectories in Patients With Systemic Sclerosis
NCT05345795 RECRUITING
Swiss Chronic Obstructive Pulmonary Disease (COPD) Management Cohort
NCT02065921 UNKNOWN
Validation of a Non-invasive Diagnostic Method for Sarcoidosis Using Exhaled Breath
NCT02361281 UNKNOWN
Predicting the Course of Chronic Obstructive Pulmonary Disease (COPD) in Primary Care
NCT00706602 UNKNOWN
Cardiovascular Risk and Chronic Obstructive Pulmonary Disease
NCT03014609 RECRUITING
Changes in Microcirculation and Functional Status During Exacerbation of COPD
NCT03250000 UNKNOWN
The C-BRIDGE Study: China Bronchiectasis Research Involving Databases, Genomics, and Endotyping
NCT06900062 RECRUITING
Disturbed Blood Flow Induces Endothelial Dysfunction in Severe Chronic Obstructive Pulmonary Disease
NCT03004352 COMPLETED NA
Endothelial Dysfunction and Chronic Obstructive Pulmonary Disease
NCT02092675 COMPLETED
Study for the Validation of the Circuit of Examinations and Analyzes for Better Classification of Airway Diseases
NCT05826522 UNKNOWN
Characterisation of Healthy Volunteers, Asthma and Chronic Obstructive Pulmonary Disease Patients for Inhalation Profile, Pharyngometry, Spirometric Indices and Lung Morphometry
NCT01345266 COMPLETED PHASE1
Basel Long COVID-19 Cohort Study and Digital Long COVID Substudy
NCT05781893 RECRUITING
Early Pulmonary Dysfunction in Childhood Cancer Patients
NCT05427136 RECRUITING
Project A3sc - An Atlas of Airways at a Single Cell Level
NCT03437122 COMPLETED NA
Epidemiology of Chronic Bronchitis in Patients With Chronic Obstructive Pulmonary Disease (COPD)
NCT02128529 COMPLETED
Nutritional Status in Patients With Acute Exacerbation of Chronic Obstructive Pulmonary Disease
NCT03709498 COMPLETED
Peripheral Endothelial Function in COPD Patients
NCT02593357 COMPLETED NA