Prospective Evaluation of Family Care Rituals in the ICU

NCT ID: NCT02875912

Last Updated: 2017-07-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

452 participants

Study Classification

INTERVENTIONAL

Study Start Date

2015-09-30

Study Completion Date

2017-06-12

Brief Summary

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This study will evaluate whether or not engaging family members of patients admitted to the ICU in "Family Care Rituals" will reduce stress related symptoms of PTSD, depression and anxiety 90 days after patient death or discharge from the ICU. Family Care Rituals are defined as several domains in which family participation may be of benefit, focusing on the 5 physical senses as well as the personal care of the patient and spirituality of the patient

Detailed Description

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Over the previous century, the location of where people die has shifted from home to either hospitals or nursing homes, with 20% of patients dying in the ICU. Several deficiencies for End-of-Life (EOL) care provided in the ICU have been identified in literature; most of them are related to communication, decision making, sense of control, spirituality, preparation for death, pain and symptom management. Symptoms of stress, anxiety or depression as well as discordance between the perceptions of care by the health care providers (physicians and nurses) and the family members may all be related to these shortcomings. These symptoms are likely from multiple factors in the ICU that strip the family of the ability to provide any direct care or nurturing for their loved one, as families did when people died at home. Moreover, qualitative studies suggest that families want and value a role as a care provider for their loved ones in the ICU. In a pilot study, the investigators identified several domains in which family participation may be of benefit, focusing on the 5 physical senses, personal care of the patient, and spirituality of the patient and family. These areas were incorporated as Family Care Rituals (FCR) in which family members can participate while their loved one is in the ICU

The investigators are conducting a multi-center, multinational prospective evaluation of FCR with the hypothesis that FCR will primarily reduce symptoms of PTSD, as well as anxiety and depression in the surviving family members at 90 days after death or discharge from the ICU. Additionally, the intervention's effect on concordance of care as measured on day of enrollment and ICU day 5 via a questionnaire administered to the family members, the day-time nurse and the attending physician will be evaluated. ICU utilization, family satisfaction, and validation of the END of live scorING System (ENDING-S) are also being evaluated. To understand what care rituals are being performed at the bedside as well as the impact on bedside nursing care, nursing is also completing daily surveys.

The investigators are planning a study of independent cases and controls with 1 control(s) per case. Prior data indicate that the incidence of PTSD in family members is 33%. To reduce the rate of PTSD for family members in the interventional arm to 17%, 114 experimental subjects and 114 control subjects will need to be enrolled to be able to reject the null hypothesis that the failure rates for experimental and control subjects are equal with probability (power) 0.8. The Type I error probability associated with this test of this null hypothesis is 0.05. An uncorrected chi-squared statistic will be used to evaluate this null hypothesis.

Conditions

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Stress Disorders, Post-Traumatic Depression Anxiety

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

PARALLEL

Prospective before and after intervention evaluation
Primary Study Purpose

HEALTH_SERVICES_RESEARCH

Blinding Strategy

NONE

Study Groups

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Usual Care

Family members are surveyed at enrollment, day 5 (if patient is still in ICU), and 90 days post ICU discharge for symptoms of PTSD, depression, and anxiety as well as for concordance of care at enrollment and ICU day 5. Nursing completes surveys while the patient is in the ICU noting what care rituals, if any, are being performed to establish baseline data

Group Type NO_INTERVENTION

No interventions assigned to this group

Family Care Rituals Intervention

At enrollment, family members are given a handout/pamphlet outlining the Family Care Rituals. They are informed of the opportunity to perform these rituals, but that they are in no way obligated to do so. The families are then surveyed in the same way as they were during the usual care, with nursing completing the same surveys as well to compare against the baseline data

Group Type EXPERIMENTAL

Family Care Rituals

Intervention Type BEHAVIORAL

Family members being enrolled are given a pamphlet outlining the Family Care Rituals. They are informed of the opportunity to perform these rituals, but that they are in no way obligated to do so.

Family members are then surveyed at enrollment, and 90 days post ICU discharge for symptoms of PTSD, as well as depression, and anxiety.

Family members, day-time nursing, and attending physicians are surveyed for concordance of care at enrollment and ICU day 5.

Demographic information is also collected on the patient and the family members at enrollment Nursing completes surveys while the patient is in the ICU noting what care rituals, if any, are being performed. Additionally, they are asked to complete a survey indicating their opinion of the impact on the care they deliver

Interventions

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Family Care Rituals

Family members being enrolled are given a pamphlet outlining the Family Care Rituals. They are informed of the opportunity to perform these rituals, but that they are in no way obligated to do so.

Family members are then surveyed at enrollment, and 90 days post ICU discharge for symptoms of PTSD, as well as depression, and anxiety.

Family members, day-time nursing, and attending physicians are surveyed for concordance of care at enrollment and ICU day 5.

Demographic information is also collected on the patient and the family members at enrollment Nursing completes surveys while the patient is in the ICU noting what care rituals, if any, are being performed. Additionally, they are asked to complete a survey indicating their opinion of the impact on the care they deliver

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* Families of patients admitted to the intensive care unit (ICU) with attending physician predicted ICU mortality of greater than 30%.
* Patients with ICU length of stay greater than 4 days, regardless of mortality, are considered for ENDING-S score

Exclusion Criteria

* Families of patients with an anticipated ICU length of stay less than 24 hours
* Families of patients admitted to the ICU for palliative/comfort care only
* Families of patients with age less than 18
* Families of patients who are pregnant
* Families of patients who are incarcerated
* Family members who are less than 18
* Family members who are pregnant
* Family members who are incarcerated
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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James M. Cox Foundation

UNKNOWN

Sponsor Role collaborator

Brown University

OTHER

Sponsor Role lead

Responsible Party

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Mitchell Levy

Chief of the Division of Pulmonary, Critical Care and Sleep Medicine Rhode Island Hospital, Brown University

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Mitchell M Levy, MD

Role: PRINCIPAL_INVESTIGATOR

Brown University

Locations

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Rush University Medical Center

Chicago, Illinois, United States

Site Status

Brown University

Providence, Rhode Island, United States

Site Status

Azienda Ospedaliero-Universitaria Careggi

Florence, , Italy

Site Status

Countries

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United States Italy

References

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Other Identifiers

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763434-9

Identifier Type: -

Identifier Source: org_study_id

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