Improving FAMily Members' Experience in the ICU

NCT ID: NCT05461521

Last Updated: 2024-10-01

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

1346 participants

Study Classification

OBSERVATIONAL

Study Start Date

2022-12-15

Study Completion Date

2024-09-13

Brief Summary

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The aim of the present research is to set up a large multicentric, prospective cohort of family members of patients admitted to intensive care. The data collected will concern the patients and their family members, the caregivers and the functioning of the services during the collection period. This cohort will allow:

1. to carry out a quantitative evaluation of post-traumatic stress disorder (PTSD) in a large number of family members, to determine the risk factors in relation to the characteristics of the family members, and to define a predictive model of PTSD in this population
2. to determine the factors related to the operating conditions of the resuscitation services that favor the occurrence of PTSD in the family members,
3. to create a biological bank from blood samples taken from family members,
4. to carry out a qualitative study allowing a psychological and sociological analysis of the experience of the family members concerning the hospitalization in intensive care of their loved one.

Detailed Description

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Conditions

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Stress Disorders, Post-Traumatic Family Members

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Family members of patients admitted to the ICU

Family members of patients admitted to the ICU

Intervention Type OTHER

At inclusion:

* Collection of demographic data, Anxiety-Depression Scale (HADS), Insomnia Severity Index (ISI), Resilience Insomnia Severity Index (ISI), Resilience Scale (CD RISC 10), Peritraumatic Dissociation Peritraumatic Dissociation Experience Scale (PDEQ) and MEDEC questionnaire.
* Venous blood sampling at 350 relatives
* Upon discharge of the patient (alive or deceased): Resuscitation questionnaire, HADS, ISI and PDEQ.

3 months after discharge: Demographic questionnaire, Post Traumatic Stress Disorder questionnaire (PCL-5), THS Past Trauma Experience Questionnaire, HADS experiences, HADS, ISI, CD RISC 10, MEDEC and Who- assist questionnaire (Question 2) on the use of psychoactive substances.

6 months after patient discharge: PCL-5, HADS, ISI, CD RISC 10, MEDEC, Who-assist (Question 2) and Prolonged Grief disorder (PG-13) questionnaire on bereavement if patient died in the ICU.

Health care professionals

Health care professionals

Intervention Type OTHER

All professionals in all categories and in all participating departments will be asked to complete questionnaires to assess the level of conflict, work stress and burn out in the units : Masclach Burnout Inventory (MBI), Job Content Questionnaire (JCQ), Ethical Decision-Making Climate Questionnaire (EDMCQ), Professional Quality Of Life scale (ProQOL), Connor-Davidson Resilience scale (CD-RISC 10), Cultural Awareness Scale (CAS).

Patients

Patients

Intervention Type OTHER

Inclusion (at D3 after admission to the ICU): collection of demographic data Discharge from the ICU: characteristics of the stay and outcome (alive/deceased)

Interventions

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Family members of patients admitted to the ICU

At inclusion:

* Collection of demographic data, Anxiety-Depression Scale (HADS), Insomnia Severity Index (ISI), Resilience Insomnia Severity Index (ISI), Resilience Scale (CD RISC 10), Peritraumatic Dissociation Peritraumatic Dissociation Experience Scale (PDEQ) and MEDEC questionnaire.
* Venous blood sampling at 350 relatives
* Upon discharge of the patient (alive or deceased): Resuscitation questionnaire, HADS, ISI and PDEQ.

3 months after discharge: Demographic questionnaire, Post Traumatic Stress Disorder questionnaire (PCL-5), THS Past Trauma Experience Questionnaire, HADS experiences, HADS, ISI, CD RISC 10, MEDEC and Who- assist questionnaire (Question 2) on the use of psychoactive substances.

6 months after patient discharge: PCL-5, HADS, ISI, CD RISC 10, MEDEC, Who-assist (Question 2) and Prolonged Grief disorder (PG-13) questionnaire on bereavement if patient died in the ICU.

Intervention Type OTHER

Health care professionals

All professionals in all categories and in all participating departments will be asked to complete questionnaires to assess the level of conflict, work stress and burn out in the units : Masclach Burnout Inventory (MBI), Job Content Questionnaire (JCQ), Ethical Decision-Making Climate Questionnaire (EDMCQ), Professional Quality Of Life scale (ProQOL), Connor-Davidson Resilience scale (CD-RISC 10), Cultural Awareness Scale (CAS).

Intervention Type OTHER

Patients

Inclusion (at D3 after admission to the ICU): collection of demographic data Discharge from the ICU: characteristics of the stay and outcome (alive/deceased)

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

Patients :

* ≥18 years old
* Treated in the ICU with invasive mechanical ventilation for 48 hours
* Having been visited by at least one family member within 72 hours of the 48th hour of intubation in intensive care
* Having been informed of the study and not having objected to the use of their medical medical data prior to discharge from the ICU if they are able to receive the information the information at the time of inclusion or consent of the family member obtained for the inclusion of the patient if the patient is not able to do so at the time of at the time of inclusion

Family members :

* ≥18 years old
* Identified if possible by the patient as the person to be referred or to be informed, or, in the case of a patient unable to express him/herself, identified by the caregivers as the "patient's close referent".
* Understanding and speaking French
* Having been informed of the study and having consented to participate in it during a visit of the patient
* Inclusion between H48 and H120 post-intubation of the patient in the ICU (if the patient is still intubated at the time of inclusion)
* Having given their telephone number
* Being covered by a social security plan.
* Only one relative of the patient is included in the study Service Professionals: All professionals in all categories and in all participating participating services who have been informed of the study and have consented to participate.

Exclusion Criteria

Patients:

* No family member or no family member visit
* No consent to participate from family member
* Organ donation planned or contemplated
* Pregnant or parturient woman
* Detained or deprived of liberty
* Under guardianship or curator
* No social security

Family members :

* Social context making follow-up and telephone interviews difficult (homeless, not residing in Europe or in the DOM)
* Inability to give a "stable" personal cell phone number
* Under guardianship or curator
* Unable to communicate on the phone (hearing impairment...)

Service Professionals:

* Not on duty (locum tenens or interim team, only on-call) on call)
* Not qualified (Physician: at least intern, nurse DE)
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Assistance Publique - Hôpitaux de Paris

OTHER

Sponsor Role collaborator

Assistance Publique Hopitaux De Marseille

OTHER

Sponsor Role collaborator

Nantes University Hospital

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Jean REIGNIER, PU-PH

Role: PRINCIPAL_INVESTIGATOR

Nantes University Hospital

Locations

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CH Angoulême

Angoulême, France, France

Site Status

Hôpital Privé d'Antony

Antony, France, France

Site Status

CH d'Argenteuil

Argenteuil, France, France

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CH de Bastia

Bastia, France, France

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CH Beauvais

Beauvais, France, France

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Hôpital Nord Franche Comté

Belfort, France, France

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CH de Béthune

Beuvry, France, France

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APHP Hôpital Avicenne

Bobigny, France, France

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CHU de Bordeaux - Hôpital Saint-André

Bordeaux, France, France

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CHU de Bordeaux - Hôpital Pellegrin

Bordeaux, France, France

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AP-HP Hôpital Ambroise Paré

Boulogne, France, France

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CH de Boulogne-sur-Mer

Boulogne-sur-Mer, France, France

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CHU de Brest

Brest, France, France

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CH de Chartres

Chartres, France, France

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CH de Cholet

Cholet, France, France

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CHU Clermont-Ferrand - Centre Jean Perrin

Clermont-Ferrand, France, France

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CHU Clermont-Ferrand - Hôpital Gabriel Montpied

Clermont-Ferrand, France, France

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CH de Dieppe

Dieppe, France, France

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CHU de Dijon

Dijon, France, France

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CH de Fréjus - Saint Raphaël

Fréjus, France, France

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APHP Hôpital Raymond Poincaré

Garches, France, France

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CHU de Grenoble Alpes

Grenoble, France, France

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GHEF- Site de Marne de la Vallée

Jossigny, France, France

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CHD Vendée

La Roche-sur-Yon, France, France

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CH de la Rochelle

La Rochelle, France, France

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CH Versailles - Hôpital André Mignot

Le Chesnay, France, France

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CH du Mans

Le Mans, France, France

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CHU de Lille - Hôpital Roger Salengro

Lille, France, France

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GHB Sud - Hôpital de Lorient

Lorient, France, France

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CHU De Lyon - Hôpital Edouard Herriot

Lyon, France, France

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AP-HM - Hôpital Nord

Marseille, France, France

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Hôpital Privé Jacques Cartier

Massy, France, France

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GHI le Raincy Montfermeil

Montfermeil, France, France

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CHU de Montpellier - Hôpital Lapeyronie

Montpellier, France, France

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CHU de Montpellier - Hôpital Saint-Eloi

Montpellier, France, France

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CHU de Nantes

Nantes, France, France

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Clinique Ambroise Paré

Neuilly-sur-Seine, France, France

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CHR d'Orléans

Orléans, France, France

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APHP Hôpital Saint-Louis

Paris, France, France

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APHP Hôpital Cochin

Paris, France, France

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APHP Hôpital La Pitié Salpêtrière

Paris, France, France

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APHP Hôpital Tenon

Paris, France, France

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APHP Hôpital Saint-Antoine

Paris, France, France

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CHI Poissy

Poissy, France, France

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CH René Dubos

Pontoise, France, France

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CH de Saint-Lô

Saint-Lô, France, France

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CH de Saint-Nazaire

Saint-Nazaire, France, France

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Hôpital du Pays Salonais

Salon-de-Provence, France, France

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CH de Bassin de Thau

Sète, France, France

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CH de Saint-Malo

St-Malo, France, France

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Hôpital Foch

Suresnes, France, France

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CH de Tourcoing - Hôpital Guy Chatiliez

Tourcoing, France, France

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Ch Bretagne Atlantique - site de Vannes

Vannes, France, France

Site Status

CH de Vichy

Vichy, France, France

Site Status

Institut Gustave Roussy

Villejuif, France, France

Site Status

CHU La Guadeloupe

Pointe-à-Pitre, France, Guadeloupe

Site Status

Countries

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France Guadeloupe

Other Identifiers

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RC22_0078

Identifier Type: -

Identifier Source: org_study_id

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