Improving the Informed Consent Process for Youth Undergoing Pediatric Endoscopy and Their Parents

NCT ID: NCT02671734

Last Updated: 2016-02-02

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

77 participants

Study Classification

INTERVENTIONAL

Study Start Date

2014-06-30

Study Completion Date

2014-08-31

Brief Summary

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The investigators employed a randomized control study design to evaluate the efficacy of a video intervention augmenting informed consent discussions in improving parental and youth informed consent comprehension.

Detailed Description

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IC = informed consent

The investigators employed a randomized control study design to evaluate the efficacy of a video intervention augmenting IC discussions in improving parental and youth IC comprehension. Sample size was selected to detect a 30% improvement in comprehension scores in the intervention v. control group. The local Institutional Review Board approved the study. Informed consent and assent were obtained prior to all study procedures.

Conditions

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Children

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

HEALTH_SERVICES_RESEARCH

Blinding Strategy

NONE

Study Groups

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control

Subjects in this arm received the standard consent form to read and underwent standard discussions with the procedurist prior to the procedure.

Group Type NO_INTERVENTION

No interventions assigned to this group

intervention

Subjects in this arm viewed a video detailing key elements of informed consent. Subjects in this arm also received the standard consent form to read and underwent standard discussions with the procedurist prior to the procedure.

Group Type ACTIVE_COMPARATOR

video

Intervention Type BEHAVIORAL

Short (2 minute 43 second), animated videos were designed addressing nature of the procedure, risks, benefits, and alternatives for upper and lower endoscopy respectively using PowToon (www.powtoon.com). Sixth grade language was used throughout the video. Videos were shown to youth and their parents on an iPad.

Interventions

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video

Short (2 minute 43 second), animated videos were designed addressing nature of the procedure, risks, benefits, and alternatives for upper and lower endoscopy respectively using PowToon (www.powtoon.com). Sixth grade language was used throughout the video. Videos were shown to youth and their parents on an iPad.

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* For children admitted, age limits listed. Youth-parent pairs were admitted into the study.
* Had to be undergoing pediatric endoscopy.
* English speaking

Exclusion Criteria

* None.
Minimum Eligible Age

7 Years

Maximum Eligible Age

17 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Huang, Jeannie, M.D.

INDIV

Sponsor Role lead

Responsible Party

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Jeannie Huang, MD, MPH

Associate Professor

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Jeannie Huang, MD, MPH

Role: PRINCIPAL_INVESTIGATOR

University of California, San Diego

Other Identifiers

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121426

Identifier Type: -

Identifier Source: org_study_id

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