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Swiss Hemophilia Registry

NCT ID: NCT02512250

Last Updated: 2022-10-27

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

900 participants

Study Classification

OBSERVATIONAL

Study Start Date

2015-05-31

Study Completion Date

2025-12-31

Brief Summary

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The Swiss Hemophilia Registry will collect data on the prophylactic and therapeutic use of factor concentrates in patients with hemophilia and other severe bleeding disorders in Switzerland.

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Detailed Description

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Conditions

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Hemophilia and Other Severe Bleeding Disorders

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Interventions

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Registry

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

Diagnosis of hemophilia or other severe bleeding disorders. Signed inform consent

Exclusion Criteria

None
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Swiss Hemophilia Network

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Kantonsspital Aarau Zentrum für Onkologie/Hämatologie und Transfusionsmedizin

Aarau, , Switzerland

Site Status RECRUITING

Kinderklinik

Aarau, , Switzerland

Site Status RECRUITING

Universitätsspital Basel Diagnostische Hämatologie

Basel, , Switzerland

Site Status RECRUITING

Universitätskinderspital beider Basel (UKBB) Abteilung Onkologie/Hämatologie

Basel, , Switzerland

Site Status RECRUITING

Ospedale San Giovanni

Bellinzona, , Switzerland

Site Status RECRUITING

Servizio di Ematologia Ospedale Regionale di Bellinzona e Valli

Bellinzona, , Switzerland

Site Status RECRUITING

Inselspital, Universitätsspital Bern Poliklinik für Hämatologie

Bern, , Switzerland

Site Status RECRUITING

Kantonspital Graubünden

Chur, , Switzerland

Site Status RECRUITING

Unité d'Hémostase HUG

Geneva, , Switzerland

Site Status RECRUITING

Unité d'Oncologie-Hématologie pédiatrique, Hôpital des Enfants HUG

Geneva, , Switzerland

Site Status RECRUITING

Centre Hospitalier Universitaire Vaudois Service d'Hématologie

Lausanne, , Switzerland

Site Status RECRUITING

Policlinique d'onco-hématologie péd., CHUV

Lausanne, , Switzerland

Site Status RECRUITING

Kantonsspital Luzern Abteilung Hämatologie

Lucerne, , Switzerland

Site Status RECRUITING

Kinderspital Luzern

Lucerne, , Switzerland

Site Status RECRUITING

Ostschweizer Kinderspital St. Gallen

Sankt Gallen, , Switzerland

Site Status RECRUITING

Kantonspital St. Gallen

Sankt Gallen, , Switzerland

Site Status RECRUITING

Kinder und Erwachsenenzentrum Sion Service Régional Valaisan de Transfusion Sanguine CRS

Sion, , Switzerland

Site Status NOT_YET_RECRUITING

University Children's Hospital

Zurich, , Switzerland

Site Status RECRUITING

University Hospital Zürich

Zurich, , Switzerland

Site Status RECRUITING

Countries

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Switzerland

Central Contacts

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Manuela Albisetti, MD

Role: CONTACT

[email protected]
+41 44 266 71 38

Facility Contacts

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Marc Heizmann, MD

Role: primary

[email protected]
062 838 60 50

MD

Role: primary

Maria Martinez, MD

Role: primary

[email protected]

Nicolas von der Weid, MD

Role: primary

[email protected]
061 704 12 12

Pierluigi Brazzola, MD

Role: primary

[email protected]
091 811 89 76

Bernhard Gerber, MD

Role: primary

[email protected]
091 811 87 78

Johanna Kremer, MD

Role: primary

[email protected]
031 632 90 22

Reta Malär, MD

Role: primary

[email protected]
+ 41 81 256 60 41

Francoise Boehlen, MD

Role: primary

[email protected]
022 372 97 57

Gabriele Martin, MD

Role: primary

[email protected]
022 372 47 12

Lorenzo Alberio, MD

Role: primary

[email protected]
021 314 11 11

Mattia Rizzi, MD

Role: primary

[email protected]

Pascal Raddatz, MD

Role: primary

[email protected]
041 205 14 39

Freimut Schilling, MD

Role: primary

[email protected]
041 205 11 11

Heinz Hengartner, MD

Role: primary

[email protected]
071 243 14 36

Lukas Graf, MD

Role: primary

[email protected]

Pierre-Yves Lovey, MD

Role: primary

[email protected]
027 603 48 63

Manuela Albisetti, MD

Role: primary

[email protected]
+ 41 44 266 71 38

Alice Trinchero, MD

Role: primary

[email protected]
.+41 44 255 11 11

Other Identifiers

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2014-0667

Identifier Type: -

Identifier Source: org_study_id

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