German Pediatric Hemophilia Research Database

NCT ID: NCT02912143

Last Updated: 2023-03-08

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

800 participants

Study Classification

OBSERVATIONAL

Study Start Date

2017-01-01

Study Completion Date

2028-12-31

Brief Summary

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The German Pediatric Hemophilia Research Database will collect data on the prophylactic and therapeutic use of factor concentrates, complications, outcome measures (joint scores, QoL) and living circumstances in newly diagnosed children with hemophilia.

Detailed Description

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Conditions

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Hemophilia A Hemophilia B Children Drug Specific Antibodies

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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newly diagnosed children with hemophilia

no intervention

documentation only

Intervention Type OTHER

Interventions

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documentation only

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* hemophilia A or B
* FVIII/FIX \<1% to 25%
* informed consent

Exclusion Criteria

* no consent
Maximum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Society for Thrombosis and Haemostasis Research (Germany)

OTHER

Sponsor Role collaborator

Goethe University

OTHER

Sponsor Role lead

Responsible Party

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Christoph Königs

Consultant Pediatric Hemophilia Center

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Christoph Königs, PhD

Role: PRINCIPAL_INVESTIGATOR

Goethe University

Locations

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Goethe University

Frankfurt am Main, Hesse, Germany

Site Status RECRUITING

Countries

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Germany

Central Contacts

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Christoph Königs, PhD

Role: CONTACT

+496963018 ext. 3030

Christoph Bidlingmaier, MD

Role: CONTACT

+498944005 ext. 2830

Facility Contacts

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Christoph Königs, PhD

Role: primary

+496963018

Other Identifiers

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DRKS00011101

Identifier Type: REGISTRY

Identifier Source: secondary_id

GEPHARD

Identifier Type: -

Identifier Source: org_study_id

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