Characteristics and Outcomes of Childhood Moyamoya in the UK

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

98 participants

Study Classification

OBSERVATIONAL

Study Start Date

2014-08-31

Study Completion Date

2015-12-31

Brief Summary

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This is a study to ascertain the number of children with moyamoya in the UK, their presenting features, clinical course and outcomes.

Detailed Description

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The study ahs 3 components:

1. Patient identification via the British Paediatric Surveillance Unit, and the 21 collaborating centres
2. Record review/patient interview to determine clinical features \& outcomes
3. Centralised review of imaging data to ascertain radiological phenotypes

Conditions

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Moyamoya

Study Design

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Observational Model Type

COHORT

Study Time Perspective

CROSS_SECTIONAL

Eligibility Criteria

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Inclusion Criteria

* Radiological diagnosis of moyamoya

Exclusion Criteria

* Refuse consent

Maximum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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vijeya ganesan, MB ChB MD

Role: PRINCIPAL_INVESTIGATOR

UCL Institute of Child Health

Locations

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Great Ormond Street Hospital for CHidlren NHS Foundation Trust

London, , United Kingdom

Site Status

Countries

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United Kingdom

Other Identifiers

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13NR31

Identifier Type: -

Identifier Source: org_study_id