Brain Health Registry: An Online Registry to Identify and Assess Subjects for Brain Research
NCT ID: NCT02402426
Last Updated: 2026-01-13
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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ENROLLING_BY_INVITATION
200000 participants
OBSERVATIONAL
2013-09-30
2030-09-30
Brief Summary
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Detailed Description
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The website will include:
1. Information about the Brain Health Registry (who is eligible to participate, the goals of the project and other relevant information about investigators and sponsors involved in the Initiative)
2. Frequently Asked Questions (FAQs) such as "How will my information be used?", "How will patient information be safeguarded?", "What information will be requested?", "How much time will be required for registration and testing?" will be addressed for participants.
3. General information about Alzheimer's disease and other neurodegenerative diseases discussed in lay terms Links to sites that may be of interest to participants
4. Login to our secure Registry website
The Registry will be a large, online database of volunteers who are interested in participating in neuroscience research. While anyone over the age of 18 is welcome to join the Registry, the intent is to concentrate all efforts on enrolling participants age 55 years and older. It will consist of online tools and databases, which are HIPAA-compliant and secure.
1. Participants will access the Registry by going to the BHR website, BrainHealthRegistry.org
2. Participants will provide their email address and create an account and user name with the Registry
3. The Registry will send an automatic email to the participant to verify their email address
4. Participants will read the online Information Sheet and will be asked to provide their consent by clicking either "I consent" or "I decline." Participants who decline to participate in the Registry will be automatically directed out of the Registry website
5. Participants who give their consent will be permitted to continue through the registration process, which includes completing a battery of questionnaires designed to obtain a general understanding of participants health, medical history wellbeing
6. In addition to questionnaires, participants will be able to complete online cognitive assessments.
7. Participants will given the option to elect a Caregiver and/or Study Partner (CASP) to enrich their study profile.
8. Participants may be referred to other research studies and/or clinical trials
Conditions
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Study Design
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COHORT
PROSPECTIVE
Eligibility Criteria
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Inclusion Criteria
Exclusion Criteria
18 Years
ALL
Yes
Sponsors
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University of California, San Francisco
OTHER
Responsible Party
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Principal Investigators
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Michael Weiner, MD
Role: PRINCIPAL_INVESTIGATOR
University of California, San Francisco
Locations
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BrainHealthRegistry.org
San Francisco, California, United States
Countries
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Related Links
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Brain Health Registry: How it works; Join
Other Identifiers
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12-09628
Identifier Type: -
Identifier Source: org_study_id
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