Extension of the Psychometric Validation Study ORCHESTRA in Patients With PAH

NCT ID: NCT02112487

Last Updated: 2025-03-30

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE3

Total Enrollment

88 participants

Study Classification

INTERVENTIONAL

Study Start Date

2014-06-23

Study Completion Date

2018-09-19

Brief Summary

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Prospective, multi-center, open-label, single-arm, Phase 3b extension study of macitentan in patients with PAH.

To assess the long-term safety of macitentan in patients with pulmonary arterial hypertension (PAH) beyond treatment in the AC-055-310 study.

Detailed Description

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To assess the long-term safety of macitentan in patients with pulmonary arterial hypertension (PAH) beyond treatment in the AC-055-310 study.

Conditions

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Pulmonary Arterial Hypertension

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Macitentan

10 mg once daily

Group Type EXPERIMENTAL

Macitentan

Intervention Type DRUG

10 mg once daily

Interventions

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Macitentan

10 mg once daily

Intervention Type DRUG

Other Intervention Names

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ACT-064992

Eligibility Criteria

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Inclusion Criteria

1. Signed informed consent prior to any study-mandated procedure.
2. Patients with PAH who completed the ORCHESTRA study (AC-055-310) as scheduled
3. Women of childbearing potential (as defined below) must:

* Have a negative serum pregnancy test at Visit 1 (i.e., Visit 4 of study AC 055 310) and agree to perform monthly serum pregnancy tests.
* Agree to use two reliable methods of contraception in parallel, from Visit 1 until 1 month after study drug discontinuation (see details below).

* A female is considered to have childbearing potential unless she meets at least one of the following criteria:

* Previous bilateral salpingo and/or oophorectomy, or hysterectomy.
* Premature ovarian failure confirmed by a specialist.
* Pre-pubescence, XY genotype, Turner syndrome, uterine agenesis.
* Postmenopausal, defined as 12 consecutive months with no menses without an alternative medical cause.
* Of the two contraceptive methods that must be used, one must be from Group 1, and one must be from Group 2, defined as follows:

* Group 1: Oral, implantable, transdermal or injectable hormonal contraceptives, intrauterine devices, female sterilization (tubal ligation or non-surgical sterilization, e.g., permanent contraception with Essure procedure), or partner's sterilization (vasectomy). If a hormonal contraceptive is chosen from this group, it must be taken for at least one month prior to enrollment. Alternatively, if the Essure procedure is chosen as a contraceptive method, a hysterosalpingogram must have been performed to confirm correct location of the microinserts and tubal occlusion (as per manufacturer's recommendations).
* Group 2: Female or male condoms, diaphragm or cervical cap, any of them in combination with a spermicide.
* Sexual abstinence, rhythm methods, or contraception by the partner alone are not considered as acceptable methods of contraception for this study.

Exclusion Criteria

1. Patients who prematurely discontinued study drug in study AC-055-310.
2. Females who are lactating or pregnant (positive Visit 1 pregnancy test) or plan to become pregnant during the study.
3. AST and/or ALT more than 3 X ULN.
Minimum Eligible Age

18 Years

Maximum Eligible Age

80 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Actelion

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Loïc Perchenet

Role: STUDY_DIRECTOR

Actelion

Locations

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Hôpital Louis Pradel

Bron, , France

Site Status

Hôpital Côte de Nacre

Caen, , France

Site Status

Hôpital Albert Michallon

Grenoble, , France

Site Status

CHU de Bicêtre

Le Kremlin-Bicêtre, , France

Site Status

CHRU Lille - Hôpital Cardiologique

Lille, , France

Site Status

Hôpital Arnaud de Villeneuve

Montpellier, , France

Site Status

Hôpitaux de Brabois

Nancy, , France

Site Status

Hôpital de Haut Levêque

Pessac, , France

Site Status

Hôpital Pontchaillou

Rennes, , France

Site Status

Hôpital Charles Nicolle

Rouen, , France

Site Status

Hôpital Nord

Saint-Etienne, , France

Site Status

Hôpital Civil

Strasbourg, , France

Site Status

Hôpital Larrey

Toulouse, , France

Site Status

Ospedale Sant'Orsola

Bologna, , Italy

Site Status

A.O.U.C. Careggi

Florence, , Italy

Site Status

UOC Immunologia Clinica B-PGRM Centro di Riferimento per la Sclerosi Sistemica

Rome, , Italy

Site Status

Centro Per La Diagnosi E La Cura Dell'Ipertensione Polmonare

Rome, , Italy

Site Status

Policlinico G.B. Rossi

Verona, , Italy

Site Status

Hospital General de Alicante

Alicante, , Spain

Site Status

Hospital Val Hebron

Barcelona, , Spain

Site Status

Hospital Clinic

Barcelona, , Spain

Site Status

Hospital de Cruces

Bilbao, , Spain

Site Status

Hospital Reina Sofia

Córdoba, , Spain

Site Status

Hospital Dr Negrin

Las Palmas de Gran Canaria, , Spain

Site Status

Hospital Universitario Insular Gran Canarias

Las Palmas de Gran Canaria, , Spain

Site Status

Hospital 12 Octubre

Madrid, , Spain

Site Status

Hospital La Paz

Madrid, , Spain

Site Status

Hospital Carlos Haya

Málaga, , Spain

Site Status

Hospital Son Espases

Palma de Mallorca, , Spain

Site Status

Hospital de Valdecilla

Santander, , Spain

Site Status

Hospital Virgen del Rocio

Seville, , Spain

Site Status

Hospita General U. Valencia

Valencia, , Spain

Site Status

Countries

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France Italy Spain

Related Links

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http://www.clinicaltrialsregister.eu/ctr-search/trial/2013-003489-15/results

Extension of the psychometric validation study ORCHESTRA in patients with PAH

Other Identifiers

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AC-055-311

Identifier Type: -

Identifier Source: org_study_id

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