Diabetes Distress, Psychological Well-being and Family Hardiness in Parents of Children and Adolescents With T1D

NCT ID: NCT02010528

Last Updated: 2014-02-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

300 participants

Study Classification

OBSERVATIONAL

Study Start Date

2013-12-31

Study Completion Date

2014-02-28

Brief Summary

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Parents have an important role in child's diabetes management. Many studies show that parental psychological stress and family dynamics are associated with parental diabetes-related distress and treatment outcomes among children and adolescents with type 1 diabetes.

The aim of this study is to analyze diabetes distress (diabetes-related parenting burden and fear of hypoglycemia), parental psychological well-being (anxiety, satisfaction with life, positive and negative affect and adult attachment relationship pattern), family hardiness and characteristics of children with type 1 diabetes in a sample of mothers and fathers of children and adolescents with type 1 diabetes of ages up to 18 years.

In this study it is hypothesized that:

1. greater parental fear of hypoglycemia and diabetes-related burden are associated with lower family hardiness and worse psychological well-being parents and higher HbA1c levels in children and adolescents with type 1 diabetes;
2. mothers will report greater fear of hypoglycemia, diabetes-related burden and lower psychological well-being comparing to fathers.
3. parents of children and adolescents with type 1diabetes will report greater anxiety, lower psychological well-being and family hardiness comparing to parents of children without diabetes.

Standardized and validated questionnaires will be used to determine: parental fear of hypoglycemia, diabetes-related burden, parent level of anxiety, psychological well-being, adult attachment relationship pattern and family hardiness.

The investigators will also measure parent daily involvement in child's diabetes management, frequency of blood glucose monitoring and parent general satisfaction with glycemic control. Objective measures such as child's HbA1c level and experience of severe hypoglycemia episode will also be obtained. These measures will be correlated with other research variables.

Detailed Description

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Conditions

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Type 1 Diabetes

Study Design

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Observational Model Type

CASE_CONTROL

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Type 1 diabetes

Parents or caregivers of children and adolescents with type 1 diabetes

No interventions assigned to this group

Controls

Parents or caregivers of children and adolescents without diabetes

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

* Parents or caregivers of children and adolescents with T1D of ages up to 18 years
* Minimal 1 year duration of Type 1 diabetes

Exclusion Criteria

* Parents or caregivers of children and adolescents with T1D of ages over 18 years
Minimum Eligible Age

2 Years

Maximum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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Slovenian Research Agency (ARRS)

UNKNOWN

Sponsor Role collaborator

University Medical Centre Ljubljana

OTHER

Sponsor Role lead

Responsible Party

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Tadej Battelino

Head, Dept. of Pediatric Endocrinology, Diabetes & Metabolism, University Children's Hospital, UMCL

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Tadej Battelino

Role: STUDY_CHAIR

Dept. of Pediatric Endocrinology, Diabetes & Metabolism, University Children's Hospital, UMCL

Locations

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Dept. of Pediatric Endocrinology, Diabetes & Metabolism, University Children's Hospital, UMCL

Ljubljana, , Slovenia

Site Status

Countries

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Slovenia

Other Identifiers

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DIS-PSY-PAR-T1D-2013

Identifier Type: -

Identifier Source: org_study_id

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