A Pilot Study of Personalized Medicine for Pediatric Asthma

NCT ID: NCT01681732

Last Updated: 2017-04-04

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

22 participants

Study Classification

INTERVENTIONAL

Study Start Date

2012-09-30

Study Completion Date

2014-08-29

Brief Summary

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A pilot study to test the feasibility of a personalized asthma care intervention.

Detailed Description

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There are two arms in this study. The control arm of the trial will involve the current standard primary care asthma management, and the intervention arm will involve personalized asthma management.

Inclusion criteria include: 1) child age 6-17 years, 2) doctor diagnosed asthma, 3) at least one asthma exacerbation in the previous year. Children with other coexistent pulmonary diseases such as chronic lung disease and cystic fibrosis will be excluded.

The period of participation will be three months for each participant. After screening, each participant will have an initial clinic visit. During this baseline visit, the investigators will collect DNA by taking a saliva sample, the investigators will conduct spirometry, and the investigators will survey the families regarding household level environmental exposures, demographics, and other key variables. The participant will be randomly assigned to a study arm at the end of the baseline visit. The data gathered at the baseline visit will be used to develop a management plan. The investigators will mail a plan to the participant and the primary care provider within a couple weeks of the baseline visit. The investigators will then discuss the plan with the participant via phone. Both groups will receive a plan which MAY be used to guide asthma care. Sample letters follow the protocol. The intervention group will receive basic information on the skin testing, genetic testing, and spirometry. The control group will not receive the genetic information. The control arm will receive the genetic information at the end of the study follow up.

After the baseline visit, the participants will receive a monthly phone call for two months to conduct a survey to assess our study outcomes and covariates. At the 3rd month participants will return to the GCRC for a final clinic visit. During the final visit the investigators will conduct our survey and spirometry and request permission for medical record release.

Conditions

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Asthma

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

SINGLE

Participants

Study Groups

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Personalized Care Plan

A personalized plan based on baseline clinic visit data

Group Type EXPERIMENTAL

Personalized Care Plan

Intervention Type OTHER

We will develop a personalized plan based on info collected in the primary visit

Control

This arm will be standard care

Group Type ACTIVE_COMPARATOR

Control Standard Care

Intervention Type OTHER

This is the standard care arm

Interventions

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Personalized Care Plan

We will develop a personalized plan based on info collected in the primary visit

Intervention Type OTHER

Control Standard Care

This is the standard care arm

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* age 6-17 years
* doctor diagnosed asthma -at least one asthma exacerbation in the previous year. -

Exclusion Criteria

-Children with other coexistent pulmonary diseases such as chronic lung disease and cystic fibrosis will be excluded.
Minimum Eligible Age

6 Years

Maximum Eligible Age

17 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Milton S. Hershey Medical Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Adam Spanier, MD, PhD, MPH

Role: PRINCIPAL_INVESTIGATOR

Milton S. Hershey Medical Center

Locations

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Penn State Hershey Children's Hospital

Hersey, Pennsylvania, United States

Site Status

Countries

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United States

Other Identifiers

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38403

Identifier Type: -

Identifier Source: org_study_id

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