Safety Study of Alfalastin (Human Alpha-1 Antitrypsin) Administered at Home

NCT ID: NCT01676688

Last Updated: 2023-10-03

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

17 participants

Study Classification

OBSERVATIONAL

Study Start Date

2012-01-31

Study Completion Date

2012-10-31

Brief Summary

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The purpose of this study is to collect safety data on ALFALASTIN® infusions performed at home or in out-of hospital locations.

Detailed Description

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Non interventional, observational, longitudinal, prospective, multicenter, non comparative study.

Conditions

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Alpha 1-Antitrypsin Deficiency

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

Participation Criteria:

* Patients above 18 y.o,
* suffering from severe forms of primary alpha-1 antitrypsin deficiency, phenotype PiZZ or PiSZ with pulmonary emphysema,
* currently treated as per routine practice, once a week, by ALFALASTIN® at home or in out-of-hospital location
* and having signed informed consent.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Laboratoire français de Fractionnement et de Biotechnologies

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Cuvelier Antoine, Prof.

Role: STUDY_DIRECTOR

Pneumology - CHU Rouen, France

Mornex Jean-François, Prof

Role: STUDY_CHAIR

Pneumology - CHU Lyon, France

Thabut Gabriel, MD

Role: STUDY_CHAIR

Pneumology - Hôpital Bichat Paris, France

Other Identifiers

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AlfaDom

Identifier Type: -

Identifier Source: org_study_id

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