Effects of HQK-1001 in Patients With Sickle Cell Disease

NCT ID: NCT01601340

Last Updated: 2015-03-18

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

TERMINATED

Clinical Phase

PHASE2

Total Enrollment

77 participants

Study Classification

INTERVENTIONAL

Study Start Date

2012-07-31

Study Completion Date

2013-12-31

Brief Summary

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The purpose of this study is to evaluate the effects of HQK-1001 on Hb F in subjects with sickle cell disease.

Detailed Description

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Conditions

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Sickle Cell Disease Sickle Cell Anemia Sickle Cell Disorders Hemoglobin S Disease Sickling Disorder Due to Hemoglobin S

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

QUADRUPLE

Participants Caregivers Investigators Outcome Assessors

Study Groups

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HQK-1001

Group Type ACTIVE_COMPARATOR

HQK-1001

Intervention Type DRUG

HQK-1001 tablets, twice daily for 48 weeks

Placebo

Group Type PLACEBO_COMPARATOR

Placebo

Intervention Type DRUG

Placebo tablets, twice daily for 48 weeks

Interventions

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HQK-1001

HQK-1001 tablets, twice daily for 48 weeks

Intervention Type DRUG

Placebo

Placebo tablets, twice daily for 48 weeks

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* Males and females between 12 and 60 years of age
* Diagnosis of SCD, type Hb SS or Hb S-B0 Thalassemia
* At least 1 episode of SCD pain crisis, acute chest syndrome, other acute SCD complications, or leg ulcers in the 12 months prior to screening
* Not being treated with Hydroxyurea (HU); if HU treatment has been previously administered and then discontinued, at least 3 months must have elapsed since last dose of HU
* If subject has been transfused in the 3 months prior to screening, then Hb A level \< 20% at screening
* Baseline Hb F level obtained within 14 days prior to randomization
* Able to swallow tablets
* Able and willing to give informed consent and/or assent
* If subject is a woman of child-bearing potential (WCBP), she must have a negative serum pregnancy test within 14 days of first dose of HQK-1001 and a negative urine pregnancy test prior to dosing on Day 1
* If a subject is a WCBP, she must agree to use an effective form of contraception starting at screening and for one month after HQK-1001 discontinuation
* Sexually active male subjects who have not had a vasectomy must agree to use latex condoms with WCBP partners or ensure that their partner(s) use an effective form of contraception starting at screening and for one month after HQK-1001 discontinuation.

Exclusion Criteria

* Assigned to a regular transfusion program
* Use of erythropoiesis stimulating agents within 90 days prior to screening
* An SCD pain crisis or SCD-related acute complication within 3 weeks prior to randomization
* More than 5 SCD pain crisis or SCD-related acute complications within 12 months prior to screening
* Pulmonary hypertension requiring therapy
* ALT or AST \> 3x ULN
* Serum creatinine \> 1.5x ULN
* Serum amylase levels \> 1.5x ULN
* Serum lipase level \> 1.5x ULN
* A serious, concurrent illness that would limit ability to complete or comply with the study requirements
* An acute illness (e.g., febrile, GI, respiratory) within 72 hours prior to screening
* History of syncope, clinically significant dysrhythmias or resuscitation from sudden death due to SCD-related complication
* Symptomatic peptic ulcer, hiatus hernia, or gastroesophageal reflux disease (GERD)
* History of pancreatitis
* Chronic opiate use, which, in the view of the investigator, could confound evaluation of an investigational drug
* Current abuse of alcohol or drugs
* Use of another investigational agent within 4 weeks or 5 half-lives, whichever is longer, prior to screening
* Currently pregnant or breast feeding a child
* Known infection with HIV-1
* Infection with hepatitis B or hepatitis C, such that subjects are currently on anti-viral therapy or will be placed on therapy
Minimum Eligible Age

12 Years

Maximum Eligible Age

60 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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HemaQuest Pharmaceuticals Inc.

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Richard Ghalie, MD, MBA

Role: STUDY_DIRECTOR

HemaQuest Pharmaceuticals Inc.

Locations

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University of South Alabama

Mobile, Alabama, United States

Site Status

Children's Hospital and Research Center - Oakland

Oakland, California, United States

Site Status

Children's National Hospital

Washington D.C., District of Columbia, United States

Site Status

Howard University Hospital

Washington D.C., District of Columbia, United States

Site Status

Georgia Health Sciences University

Augusta, Georgia, United States

Site Status

University of Illinois at Chicago

Chicago, Illinois, United States

Site Status

Tufts Medical Center

Boston, Massachusetts, United States

Site Status

New York Methodist Hospital

Brooklyn, New York, United States

Site Status

The Children's Hospital at Montefiore Medical Center

The Bronx, New York, United States

Site Status

University of North Carolina at Chapel Hill

Chapel Hill, North Carolina, United States

Site Status

Virginia Commonwealth Univeristy - Center on Health Disparities

Richmond, Virginia, United States

Site Status

University Health Network Toronto General Hospital

Toronto, Ontario, Canada

Site Status

Abu El Reesh Pediatric University Hospital

Cairo, , Egypt

Site Status

Ain Sham University Hospital

Cairo, , Egypt

Site Status

University of the West Indies

Mona, Kingston 7, , Jamaica

Site Status

American University of Beirut Medical Center

Beirut, , Lebanon

Site Status

Chronic Care Center

Beirut, , Lebanon

Site Status

Rafik Hariri University Hospital

Beirut, , Lebanon

Site Status

Countries

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United States Canada Egypt Jamaica Lebanon

References

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Reid ME, El Beshlawy A, Inati A, Kutlar A, Abboud MR, Haynes J Jr, Ward R, Sharon B, Taher AT, Smith W, Manwani D, Ghalie RG. A double-blind, placebo-controlled phase II study of the efficacy and safety of 2,2-dimethylbutyrate (HQK-1001), an oral fetal globin inducer, in sickle cell disease. Am J Hematol. 2014 Jul;89(7):709-13. doi: 10.1002/ajh.23725. Epub 2014 Apr 15.

Reference Type DERIVED
PMID: 24677033 (View on PubMed)

Other Identifiers

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HQP 1001-SCD-007

Identifier Type: -

Identifier Source: org_study_id

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