Psychosocial Adjustment of Patients and Their Partners Following Breast Cancer Diagnosis

NCT ID: NCT01392066

Last Updated: 2014-04-23

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

1584 participants

Study Classification

OBSERVATIONAL

Study Start Date

2011-07-31

Study Completion Date

2013-10-31

Brief Summary

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The purpose of this study is to describe psychosocial adjustment in patients with breast cancer and their cohabiting partners/spouses throughout the cancer trajectory, to study mutual influences of the partner on the patient and vice versa, and to identify risk and protective factors that influence the adjustment process in both patients and partners. The overall aim is to generate knowledge that helps enables us to integrate the partners' needs, problems and resources in treatment and rehabilitation of breast cancer patients.

Detailed Description

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Breast cancer is a major life event. A patient's experience of breast cancer may depend heavily on her intimate partner. However, both patients and partners may experience depressed mood or other psychosocial adjustment problems. Individual and relationship factors, such as the couple's joint efforts to deal with the cancer experience, are likely to contribute to their psychosocial adjustment. More knowledge is needed on the adjustment problems patients and partners experience and how they deal with them.

The study investigates the following research questions:

* Which psychosocial adjustment problems do patients and partners experience throughout the cancer trajectory?
* To what extent do the patient's psychosocial adjustment problems influence the partner's psychosocial adjustment problems and vice versa?
* Which factors are associated with psychosocial adjustment problems?
* How do different strategies of dyadic coping influence the psychosocial adjustment of both the patient and the partner?

A prospective, population-based cohort will be established of women diagnosed with breast cancer in Denmark and their partners. The study combines questionnaire data and data from nationwide clinical and administrative registries.

An invitation letter and study material will be sent to patients by mail. Patients will be asked to invite their partner to participate in the study. Only couples in which both the patient and the partner wish to participate will be asked to complete the questionnaire at 5 and 12 months of follow-up.

Up to 3000 couples (3000 patients and 3000 partners) will be asked to participate in the study during the one year inclusion period.

Conditions

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Breast Cancer

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Breast cancer patients and their partners

Patients with breast cancer and their cohabiting partners/spouses

questionnaire

Intervention Type BEHAVIORAL

Both the patient and the partner/spouse fill out a questionnaire that assesses their psychosocial adjustment. Time for completion is ca. 30 minutes.

The questionnaire is administered at baseline and 5- and 12-months follow up.

Interventions

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questionnaire

Both the patient and the partner/spouse fill out a questionnaire that assesses their psychosocial adjustment. Time for completion is ca. 30 minutes.

The questionnaire is administered at baseline and 5- and 12-months follow up.

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* For patients: being a female patient diagnosed with primary breast cancer within the last four months
* For patients: cohabiting with a male partner/spouse
* For partners: being the male cohabiting partner/spouse of a patient diagnosed with primary breast cancer within the last four months

Exclusion Criteria

* For patients: previous diagnosis of breast cancer or breast cancer relapse
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Danish Cancer Society

OTHER

Sponsor Role collaborator

University of Groningen

OTHER

Sponsor Role collaborator

Rigshospitalet, Denmark

OTHER

Sponsor Role collaborator

Herlev Hospital

OTHER

Sponsor Role collaborator

University of Southern Denmark

OTHER

Sponsor Role lead

Responsible Party

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Nina Rottmann

MSc

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Dorte Gilså Hansen, MD, PhD

Role: STUDY_CHAIR

Research Unit of General Practice, Institute of Public Health, University of Southern Denmark

Christoffer Johansen, MD, PhD, DMSc

Role: STUDY_CHAIR

Institute of Cancer Epidemiology, Danish Cancer Society

Mariet Hagedoorn, MSc, PhD

Role: STUDY_CHAIR

University Medical Center Groningen

Nina Rottmann, MSc

Role: PRINCIPAL_INVESTIGATOR

Research Unit of General Practice, Institute of Public Health, University of Southern Denmark

Locations

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University of Southern Denmark

Odense, Southern Denmark, Denmark

Site Status

Countries

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Denmark

Other Identifiers

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R40-A1920

Identifier Type: OTHER_GRANT

Identifier Source: secondary_id

2010-41-5193

Identifier Type: OTHER

Identifier Source: secondary_id

2012-41-0901

Identifier Type: OTHER

Identifier Source: secondary_id

SDU-NFK-FK-2011

Identifier Type: -

Identifier Source: org_study_id

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