Safety and Efficacy Study of IGF-1 in Duchenne Muscular Dystrophy

NCT ID: NCT01207908

Last Updated: 2021-01-20

Study Results

Results available

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE1/PHASE2

Total Enrollment

44 participants

Study Classification

INTERVENTIONAL

Study Start Date

2010-11-30

Study Completion Date

2013-06-30

Brief Summary

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The purpose of this study is to determine whether IGF-1 therapy improves or preserves muscle function in Duchenne Muscular Dystrophy (DMD).

Detailed Description

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Detailed Description:

DMD is a progressive degenerative muscle disorder for which there is no current cure. Glucocorticoids (GC) are often used to improve motor function and survival but have significant side effects such as growth failure, weight gain, insulin resistance and osteoporosis. IGF-1 stimulates both the proliferation and differentiation of skeletal muscle cells and is thus important for muscle repair and regeneration. IGF-1 offers potential as a therapeutic agent for DMD as it may improve or preserve motor function and reduce GC side effects such as growth failure and insulin resistance.

Conditions

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Duchenne Muscular Dystrophy

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

SINGLE

Outcome Assessors

Study Groups

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IGF-1

IGF-1 plus standard steroid treatment

Group Type EXPERIMENTAL

IGF-1

Intervention Type DRUG

IGF-1 will be administered once daily by subcutaneous injection every morning with breakfast. Duration 6 months.

Standard steroid treatment alone

Standard daily steroid treatment for DMD

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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IGF-1

IGF-1 will be administered once daily by subcutaneous injection every morning with breakfast. Duration 6 months.

Intervention Type DRUG

Other Intervention Names

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Increlex (mecasermin [rDNA origin] injection)

Eligibility Criteria

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Inclusion Criteria

* DMD diagnosed with mutational testing and/or complete absence of dystrophin on muscle biopsy
* Proximal pelvic girdle weakness (Gower's maneuver, difficulty with arising from floor and going up steps)
* Male
* Age \> 5 years of age
* Bone maturation (assess by bone age x-ray): \</= 11 years of age
* Daily GC (prednisone or deflazacort) therapy for \> 12 months
* Ambulatory
* Informed consent
* Willingness and ability to comply with all protocol requirements and procedures

Exclusion Criteria

* Current or prior treatment with growth hormone or IGF-1 therapy
* Non-ambulatory
* Pubertal (based on clinical Tanner staging examination)
* Congestive cardiac failure
* History of intracranial hypertension
* Daytime ventilatory dependence (non-invasive or tracheostomy)
* Concomitant therapy - any other medications/supplements that would be considered, in the opinion of the investigators, to affect muscle function, need to have been started 3 months prior to enrollment
* Patients enrolled in other clinical drug trials
* Any physical or mental conditions which may, in the investigators'opinions, render the subject unable to complete the tasks of the study appropriately
* There will be no selection by ethnicity
Minimum Eligible Age

5 Years

Eligible Sex

MALE

Accepts Healthy Volunteers

No

Sponsors

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Ipsen

INDUSTRY

Sponsor Role collaborator

Charley's Fund

OTHER

Sponsor Role collaborator

Children's Hospital Medical Center, Cincinnati

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Meilan Rutter, MD

Role: PRINCIPAL_INVESTIGATOR

Children's Hospital Medical Center, Cincinnati

Locations

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Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States

Site Status

Countries

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United States

Related Links

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Other Identifiers

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2010-1491

Identifier Type: -

Identifier Source: org_study_id

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