Real-World Study on the Burden of Hidradenitis Suppurativa

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

NOT_YET_RECRUITING

Total Enrollment

100 participants

Study Classification

OBSERVATIONAL

Study Start Date

2026-01-31

Study Completion Date

2026-07-31

Brief Summary

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Despite the significant impact of HS on patients' quality of life (QoL) and daily functioning, there remains limited real-world evidence describing the burden of this condition in Canada. HS is an under-recognized and often misdiagnosed condition, with a substantial psychological and physical burden on patients. Understanding the real-world experiences of individuals living with HS in Canada can help identify unmet needs and inform patient-centered care approaches.

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Detailed Description

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Conditions

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Hidradenitis Suppurativa (HS)

Study Design

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Observational Model Type

COHORT

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Patient with HS

Patient diagnosed with HS

No Intervention: Observational Cohort

Intervention Type OTHER

No specific intervention is assess in this study. Observational cohort.

Interventions

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No Intervention: Observational Cohort

No specific intervention is assess in this study. Observational cohort.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

1. Patient diagnosed with HS;
2. Aged ≥18 years;
3. Able to read and understand French or English;
4. Willing and able to provide written informed consent.