SUPPORT-T in Patients With Progressive Pulmonary Fibrosis and Their Caregivers

NCT ID: NCT07269262

Last Updated: 2026-02-02

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

NA

Total Enrollment

170 participants

Study Classification

INTERVENTIONAL

Study Start Date

2026-01-13

Study Completion Date

2027-10-01

Brief Summary

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This pilot randomized controlled trial evaluates the feasibility, acceptability, and accessibility of SUPPORT-T, a digitally delivered palliative care intervention for patients with Progressive Pulmonary Fibrosis (PPF) and their caregivers. The intervention includes a 9-week digital application guided by a nurse interventionist and quarterly virtual support groups over one year. Participants will be recruited from rural South Carolina and urban New York City. The study compares SUPPORT-T to Enhanced Usual Care and aims to inform a future multi-site trial.

Detailed Description

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Conditions

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Progressive Pulmonary Fibrosis Interstitial Lung Disease

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

SINGLE

Outcome Assessors

Study Groups

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SUPPORT-T Intervention Arm

Participants in the intervention arm will have a telehealth preparatory visit scheduled 1 week later (Week 2) with the Study Coordinator and will be provided with the study number to call with questions.

SUPPORT-T will be delivered biweekly at TeleHealth Visits 1-4 via a secure interface via MUSC telehealth platform. The nurse interventionist will receive results from the REDCap survey after each TH visit and contact the patient biweekly after each TH visit using the MUSC Telehealth and/or Health platform. The nurse interventionist will be available for any questions and communicate with the participants via bi-directional texts (SC will maintain a log of those texts).

• All participants will complete questionnaires at Week 1, Week 9, Month 6, and Month 12

Group Type EXPERIMENTAL

SUPPORT-T Educational Intervention

Intervention Type OTHER

SUPPORT-T will be delivered biweekly at TeleHealth Visits 1-4 via a secure interface via MUSC telehealth platform. The nurse interventionist will receive results from the REDCap survey after each TH visit and contact the patient biweekly after each TH visit using the MUSC Telehealth and/or Health platform. The nurse interventionist will be available for any questions and communicate with the participants via bi-directional texts (SC will maintain a log of those texts)

Enhanced Usual Care Control Group

* Participants in the enhanced usual care arm will receive printed education materials from the Pulmonary Fibrosis Foundation (PFF) and the nurse interventionist's contact information.
* All participants will complete questionnaires at Week 1, Week 9, Month 6, and Month 12

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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SUPPORT-T Educational Intervention

SUPPORT-T will be delivered biweekly at TeleHealth Visits 1-4 via a secure interface via MUSC telehealth platform. The nurse interventionist will receive results from the REDCap survey after each TH visit and contact the patient biweekly after each TH visit using the MUSC Telehealth and/or Health platform. The nurse interventionist will be available for any questions and communicate with the participants via bi-directional texts (SC will maintain a log of those texts)

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Adults ≥18 years
* Confirmed diagnosis of PPF
* English or Spanish speaking


* adult, ≥ 18 years old
* Designated and identified by patient as providing most of the emotional, financial, and/or physical support (i.e., the individual most involved in care, does not have to live with patient)
* Able to speak and understand English.

Exclusion Criteria

\-
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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National Institutes of Health (NIH)

NIH

Sponsor Role collaborator

Medical University of South Carolina

OTHER

Sponsor Role lead

Responsible Party

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Kathleen Lindell

Associate Professor-Faculty

Responsibility Role PRINCIPAL_INVESTIGATOR

Locations

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Medical University of South Carolina

Charleston, South Carolina, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Kathleen Lindell, PhD, RN, ATSF, FAAN

Role: CONTACT

(843) 792-9763

Facility Contacts

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Mary Chris Pittman, BA

Role: primary

8432594689

Kathleen Lindell, PhD, RN, ATSF, FAAN

Role: backup

(843) 792-9763

Other Identifiers

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Pro00146761

Identifier Type: -

Identifier Source: org_study_id

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